AI Article Synopsis

  • Research on the experiences and needs of oral/oropharyngeal cancer survivors post-treatment is limited.
  • A study involving 92 survivors revealed that about half did not receive a written treatment summary and many wanted more information on long-term effects, follow-up care, and symptoms.
  • While overall support needs were relatively low, those with a cancer recurrence or higher distress reported a stronger desire for information and support.

Article Abstract

Background: There is little research documenting the posttreatment experiences and needs of oral/oropharyngeal cancer survivors.

Methods: In this cross-sectional study, 92 patients with oral/oropharyngeal cancer diagnosed between 2 and 5 years prior completed a survey about oral cancer information and support needs.

Results: About half retrospectively reported that they did not receive a written treatment summary. The desire for more oral cancer information was common; one-third or more desired more information about long-term effects, recommended follow-up, and symptoms that should prompt contacting a doctor. Support needs were less common; only a lack of energy was rated as a significant support need. Patients who had a recurrence, did not drink alcohol, and had a greater recurrence fear desired more information. Smokers and more distressed patients reported more support needs.

Conclusion: Survivors reported the desire for more oral cancer information. A desire for assistance was less common. © 2016 Wiley Periodicals, Inc. Head Neck 38: E1935-E1946, 2016.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4844877PMC
http://dx.doi.org/10.1002/hed.24351DOI Listing

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