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"It's Just Good Science": A Qualitative Study Exploring Equity, Diversity and Inclusion in Canadian Arthritis Research.
Arthritis Care Res (Hoboken)
December 2024
The University of British Columbia, Vancouver, British Columbia, Canada.
Objective: Despite knowledge that health outcomes vary according to patient characteristics, identity, and geography, including underrepresented populations in arthritis research remains a challenge. We conducted interviews to explore how researchers in arthritis have used equity, diversity, and inclusion (EDI) principles to inform their research.
Methods: Semi-structured interviews were conducted with individuals who 1) have experience conducting arthritis research studies; 2) reside in and/or conduct their research in Canada; and 3) speak English or French.
SpeechMatch-A novel digital approach to supporting communication for neurodiverse groups.
Healthc Technol Lett
December 2024
Department of Intellectual Disability Neuropsychiatry, Research Team Cornwall Partnership NHS Foundation Trust Truro UK.
Communication can be a challenge for a significant minority of the population. Those with intellectual disability, autism, or Stroke survivors can encounter significant problems and stigma in their communication abilities leading to worse health and social outcomes. SpeechMatch (https://www.
View Article and Find Full Text PDFThe South African Competition Commission COVID-19 easing of competition rules for private healthcare to facilitate public-private interaction - a media content analysis.
BMC Health Serv Res
December 2024
Department of Global Health, Division of Health Systems and Public Health, Stellenbosch University, Cape Town, South Africa.
Background: Future emergencies from climate degradation or diseases are likely, prompting ongoing investment in emergency readiness and learning from country responses. South Africa's healthcare system, divided into public and private sectors, required a coordinated, intersectoral response to the COVID-19 pandemic. A coordinated action that the South African government took was adapting competition regulations.
View Article and Find Full Text PDFScience for tomorrow's neurosurgery: insights on establishing a neurosurgery patient group focused on developing novel intra-operative imaging techniques.
Res Involv Engagem
October 2024
School of Biomedical Engineering and Imaging Sciences, King's College London, Lambeth Palace Road, London, SE1 7EH, UK.
Background: Incorporating patient and public involvement (PPI) in research is crucial for ensuring the relevance and success of studies, yet it remains significantly underutilised in surgical research.
Main Body: This commentary presents insights from our neurosurgical research team's experience with establishing and working with a PPI group called "Science for Tomorrow's Neurosurgery" on research regarding novel intra-operative optical imaging techniques. Through collaboration with patient-focused charities, we have successfully incorporated patient perspectives into our work at each stage of the research pipeline, whilst adhering to core PPI principles, such as reciprocal relationships, co-learning, partnerships, and transparency.
Credit where it's due: Recognising lived experience in research authorship.
Patient Educ Couns
January 2025
Rosemary Bryant AO Research Centre, University of South Australia, Adelaide, Australia. Electronic address:
Objective: To identify current practice and preferences about whether and how to acknowledge authors' lived experience when authors contribute their lived experience expertise to research outputs in the context of health and healthcare.
Methods: Surveys to people with lived experience and to academic researchers who had conducted research together (via consultation, partnership or lived-experience-led).
Results: Responses from 40 academic researchers and 36 lived experience contributors were included.
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