Using birth stories as our object of inquiry, this article examines the ways in which normative discourses about gender, disability and Down syndrome construct the birth stories of three mothers of children with Down syndrome. Their stories are composed of the mothers' recollections of the first hours after birth as a time when their infants are separated from them and their postpartum needs are ignored. Together, their stories illustrate socio-cultural tropes that position Down syndrome as a dangerous form of the "other" and mothers who give birth to children with Down syndrome as implicated in transgressing cultural norms.
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http://dx.doi.org/10.1007/s10912-015-9367-z | DOI Listing |
Des Sci
October 2024
College of Design, North Carolina State University, Raleigh, NC, USA.
This article outlines a human-centered approach to developing digital patient stories, for sharing their experiences in health care, while preserving patient and others' privacy. Employing a research-through-design approach, the study proposes a design solution using visualization and digital storytelling to document patients' and families' experiences and emotions, as well as their interactions with healthcare professionals in the postnatal unit. By transforming selected observational data into animated stories, this approach has the potential to elicit empathy, stimulate stakeholder engagement, and serve as a practical training tool for clinicians.
View Article and Find Full Text PDFSoins
January 2025
Laboratoire de psychologie clinique, psychopathologie, psychanalyse, Université Paris Cité, 71 avenue Édouard-Vaillant, 92100 Boulogne-Billancourt, France; Maison de Solenn, Hôpital Cochin, AP-HP, 97 boulevard de Port-Royal, 75014 Paris, France; CESP, Faculté de médecine, Université Paris-Sud, Hôpital Paul-Brousse, 16 avenue Paul-Vaillant-Couturier, 94807 Villejuif cedex, France.
With the help of clinical vignettes, the authors present their approach to maternity care for exiled pregnant women at risk of psychotrauma. They emphasize the importance of co-constructing a life story to bridge discontinuities, and of working as a team with continuity to avoid further breakdowns. At stake is the birth of a baby, which may suffer from psychotraumatic sharing without adequate support.
View Article and Find Full Text PDFEarly Hum Dev
January 2025
Department of Women and Children's Health, St Thomas' Hospital, King's College London, London, UK; Department of Perinatal Imaging, St Thomas' Hospital, King's College London, London, UK.
Objectives: The aim of this study was to utilise T2* relaxometry (an indirect method of quantifying tissue oxygenation) to assess the fetal thymus in uncomplicated pregnancies throughout gestation and in a cohort of fetuses that subsequently deliver very preterm.
Methods: A control group of participants with low-risk pregnancies were recruited and retrospectively excluded if they developed any pregnancy related complications after scanning. Participants were recruited who were deemed to be at very high risk of delivery prior to 32 weeks' gestation and retrospectively excluded if they did not deliver prior to this gestation.
Midwifery
December 2024
School of Community Health and Midwifery, University of Central Lancashire, Preston, Lancashire PR1 2HE, UK. Electronic address:
Women's experiences of childbirth have generally been considered through a pathological lens. Wider sociological arguments associated with salutogenesis stress the need to depict health on a continuum to help understand what constitutes positive health as well as ill-health. Similarly, to fully understand women's experiences of childbirth, it needs to be explored on a continuum, considering salutogenic and pathogenic factors.
View Article and Find Full Text PDFJ Med Biogr
January 2025
Department of Laboratory Medicine and Pathology, University of Washington, Seattle, USA.
Marcello Malpighi, renowned as the founder of microscopic anatomy, faced many challenges throughout his life. Among these was his frail health, which deteriorated in his early 40s when he developed kidney stones. He struggled with arthritic pain and heart palpitations, which, along with his renal condition, gradually became worse as he got older.
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