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Dementia Care Research and Psychosocial Factors.
Alzheimers Dement
December 2024
University of British Columbia, Vancouver, BC, Canada.
Background: Social media platforms are increasingly used by people living with dementia and their care partners to seek information and advice, share personal stories, raise awareness, and offer support to others. Engagement with social media is often accompanied by a personal disclosure of a dementia diagnosis or identification as a care partner, but the impact of this disclosure remains unknown. Social media engagement can be beneficial by facilitating peer-interactions and social support; however experts have raised concerns about the potential for exposure to misinformation and stigma as a result of self-disclosure.
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Alzheimers Dement
December 2024
University of Toronto, Toronto, ON, Canada.
Background: Commercially available exercise video games ('exergames') can be used by people with dementia with the right (human) prompting and support. However, more information is needed about what makes these systems and games technologically accessible for this population, considering their cognitive difficulties. This study explores what works and doesn't work for people with dementia when introducing new exergame systems and games to broaden opportunities for physical activity.
View Article and Find Full Text PDFDementia Care Research and Psychosocial Factors.
Alzheimers Dement
December 2024
Chungnam National University, College of Nursing, Daejeon, Korea, Republic of (South).
Background: Older adults in rural areas often face the challenge of managing their health decisions due to limited access to medical services. Cognitive function, particularly the awareness and assessment of one's memory abilities, plays a significant role in the decision-making process. This study investigates the relationship between subjective memory ability and health-related decision-making among older adults in rural areas.
View Article and Find Full Text PDFDementia Care Research and Psychosocial Factors.
Alzheimers Dement
December 2024
Oregon Health & Science University, Portland, OR, USA.
Background: Persons with cognitive impairment may experience difficulties with language and cognition that interfere with their ability to make and communicate decisions. We developed an online visual tool to facilitate conversations about their preferences concerning supportive care.
Methods: We conducted Zoom interviews with persons with mild cognitive impairment (MCI) and mild to moderate dementia, using storytelling and a virtual tool designed to facilitate discussion.
Rationale: Prior work has shown a preference among most people with dementia and their families for comfort-focused care near the end-of-life. Nonetheless, intubation and mechanical ventilation are increasing over time without concurrent trends in improved survival, including among those with advanced dementia. A better understanding of prehospital decision-making about intubation for people with dementia will guide efforts to increase goal-concordant care at onset of critical illness.
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