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| http://dx.doi.org/10.1177/1715163515569212 | DOI Listing |
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What Next for the Science of Patient Preference? Interoperability, Standardization, and Transferability.
Patient
January 2025
Pfizer, New York City, NY, USA.
Using patient preference information (PPI) to incorporate patient voices into the drug development lifecycle can help align therapies with the needs and values of patients. However, several barriers have limited the use of PPI, including a lack of clarity on its use by decision-makers, a need for greater decision-maker trust in PPI, and a lack of time, budgets, and access to specialist expertise. The value proposition for PPI could be enhanced by making it FAIR: Findable, Accessible, Interoperable, and Reusable.
View Article and Find Full Text PDFInvestigating the longitudinal bi-directional relationship between self-reported restrictive eating behaviours and sleep in UK adolescents within the Millennium Cohort Study.
Eur Child Adolesc Psychiatry
January 2025
University of Edinburgh, Edinburgh, United Kingdom.
Objective: This study aimed to investigate the longitudinal bi-directional relationship between self-reported restrictive eating behaviours and sleep characteristics within a sample of UK adolescents from the Millennium Cohort Study (MCS).
Method: Using a Structural Equation Modelling approach, the present study investigated the prospective associations between individual sleep behaviours (e.g.
Patients' views on stroke prevention for atrial fibrillation after an intracerebral haemorrhage: a qualitative study.
Eur J Cardiovasc Nurs
January 2025
Liverpool Centre for Cardiovascular Science, University of Liverpool, Liverpool John Moores University, and Liverpool Heart and Chest Hospital, Liverpool, UK.
Aim: (i) To explore the attitudes of patients with atrial fibrillation (AF) towards oral anti-coagulation (OAC) for stroke prevention post-intracerebral haemorrhage (ICH) and (ii) to explore factors that influence patients' decision-making process for stroke prevention.
Methods And Results: Patients with documented diagnosis of AF and history of a non-traumatic ICH, who were eligible for long-term OAC were recruited from eight hospitals in England, using purposive sampling. Data were collected using semi-structured interviews and analysed using Framework analysis.
Patterns of willingness to share health data with key stakeholders in US consumers: a latent class analysis.
J Am Med Inform Assoc
January 2025
Department of Health Policy and Management, Fielding School of Public Health, UCLA, Los Angeles, CA 90095, United States.
Objective: To identify distinct patterns in consumer willingness to share health data with various stakeholders and analyze characteristics across consumer groups.
Materials And Methods: Data from the Rock Health Digital Health Consumer Adoption Survey from 2018, 2019, 2020, and 2022 were analyzed. This study comprised a Census-matched representative sample of U.
Finding Common Ground in Health Promotion in an Era of Growing Distrust and Polarization.
Am J Health Promot
January 2025
In 2025 the changes in national leadership cast a surprising light and ineffable shadows on America's race, gender and class dynamics. Unexpectedly, women and people of color did not vote as a monolithic force in favor of one side or another of culture wars. In the health promotion discipline alarms are being sounded that America's new political leadership will use their newfound popularity among a wider constituency to question the integrity of public health and challenge the value of science writ large.
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