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Toward a More General Consent for the Use of Patients' Biological Material and Health Information for Medical Research-The Patient Perspective.
Biopreserv Biobank
January 2025
Department for Food Safety, Norwegian Institute of Public Health, Oslo, Norway.
Biological material and health information from patients are valuable for medical research. Under a "broad" consent model, hospital patients in Norway can consent to their biological material and health information being stored in research biobanks and used for "specific, broadly defined research purposes" within a specified medical research area but not for medical research in general. Patients are asked to provide new consent each time researchers wish to use their material in a different medical research area.
View Article and Find Full Text PDFInvestigating the Factors Behind Patients' Desire and Decision to be Accompanied: A Cross-Sectional Analysis.
Health Expect
February 2025
Department of Family Medicine, Faculty of Medicine, Çanakkale Onsekiz Mart University, Çanakkale, Turkey.
Introduction: Medical education typically focuses on the dyadic interaction between patient and physician. However, there is another significant presence in the room that can also impact the patient's health outcomes: caregivers. This topic has been relatively underexplored until now, and there is insufficient information available regarding situations in different cultures.
View Article and Find Full Text PDFCommunications needs of family caregivers of geriatric unit residents at end-of-life.
Gerontologist
January 2025
Department of Health Promotion, School of Public Health, Faculty of Medical and Health Sciences, Tel Aviv University, Israel.
Background And Objective: There is a dearth of literature regarding the communication needs of family caregivers of institutionalized older adults and the degree to which these needs are fulfilled. This study aimed to clarify those needs regarding communication with staff in geriatric facilities during older non-communicative residents' end-of-life.
Research Design And Methods: Personal interviews were conducted with 135 family caregivers from two geriatric medical centers and two nursing homes in Israel.
Comparing COVID-19 literacy and vaccine hesitancy among health care workers, including oral health professionals, in Japan.
BDJ Open
January 2025
Fukuoka Nursing College, Graduate School of Nursing, 2-15-1 Tamura, Sawara-ku, Fukuoka, 814-0193, Japan.
Background: Oral health professionals should have good COVID-19 vaccine literacy as should physicians and nurses. However, little is known about COVID-19 literacy and vaccine hesitancy among oral health professionals in Japan.
Aims: This study aimed to investigate the status of COVID-19 literacy and vaccine hesitancy among oral health professionals by comparing them with other healthcare workers (HCWs).
The Pelvic Floor Disorders Network: Evolution Over Two Decades of Female Pelvic Floor Research.
Urogynecology (Phila)
October 2024
Data Coordinating Center, RTI International, Research Triangle Park, NC.
Importance: This review aimed to describe research initiatives, evolution, and processes of the Eunice Kennedy Shriver National Institute of Child Health and Human Development-supported Pelvic Floor Disorders Network (PFDN). This may be of interest and inform researchers wishing to conduct multisite coordinated research initiatives as well as to provide perspective to all urogynecologists regarding how the PFDN has evolved and functions.
Study Design: Principal investigators of several PFDN clinical sites and Data Coordinating Center describe more than 20 years of development and maturation of the PFDN.
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