AI Article Synopsis

  • The increase in life expectancy has led to more chronic illnesses being diagnosed in individuals with intellectual disabilities, but there's a lack of research on the psychological impact of these illnesses.
  • A systematic review identified only four relevant studies that focused on adults with an intellectual disability facing conditions like cancer, chronic pain, and diabetes.
  • The findings highlighted six major themes, including issues like delayed diagnosis, communication barriers, negative mental and physical health effects, social perceptions, and the importance of social support, indicating significant unmet needs and the need for further research.

Article Abstract

Background: Increased life expectancy has led to an increase in diagnoses of chronic illness in people with an intellectual disability; despite this increase, research about the psychological impact is rare. This review explored the psychosocial experiences of chronic illness in adults with an intellectual disability, revealing potential predictors and moderators of these experiences.

Methods: Online databases were systematically searched to identify relevant literature, using predefined inclusion criteria. Of the 25,058 titles initially identified, 4 were included, that is, those collecting data on people with an intellectual disability and diagnosed with cancer (n = 2), chronic pain (n = 1) and diabetes (n = 1).

Results: Narrative synthesis of the data identified six themes, namely, (1) delayed diagnosis, (2) information, communication and understanding, (3) negative psychological consequences, (4) negative physical consequences, (5) social perception and (6) social support.

Conclusions: There are unmet needs within this population, including a lack of assistance in understanding their illness. A substantial gap in the literature should be addressed through further empirical work.

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Source
http://dx.doi.org/10.1177/1744629514565680DOI Listing

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