Aims: This paper aims to report carers' perceptions of the impact of home telehealth on the provision of care and the sustainability of home telehealth use.
Method: This paper is reporting on a sample of 15 carers who were involved in the telehealth arm of a larger controlled trial.
Results: Carers primarily believed that telehealth helped to provide better care. None of the carers had organised, or planned to organise, ongoing telehealth monitoring beyond the study. The main reason given for non-sustained usage was the belief that the person they cared for no longer required, or would benefit from, the monitoring.
Conclusion: As the person being cared for was a frail older person with multiple chronic diseases and a history of recent hospitalisation, the non-sustained usage of home telehealth by carers raises questions about what is needed to ensure sustainability of use; this requires further investigation.
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http://dx.doi.org/10.1111/ajag.12139 | DOI Listing |
Intensive Crit Care Nurs
January 2025
Faculty of Medicine and Health, The University of Sydney Susan Wakil School of Nursing and Midwifery Camperdown NSW Australia; Western Sydney Local Health District, North Parramatta, NSW 2141, Australia. Electronic address:
Background: Emergency departments have high levels of uncertainty, long wait times, resource shortages, overcrowding and a constantly changing environment. Patient experience and patient safety are directly linked, yet levels of patient experience are stagnant. To improve emergency nursing care and patient experience, an emergency nursing framework HIRAID® (History including Infection risk, Red flags, Assessment, Interventions, Diagnostics, communication, and reassessment) was implemented in 29 Australian emergency departments.
View Article and Find Full Text PDFJ Adv Nurs
January 2025
School of Nursing, Jilin University, Changchun, China.
Aim: To review the experiences of family caregivers using home care services, the perception of home care services and the positive and negative effects on family caregivers.
Design: A scoping review of the literature was undertaken using JBI guidance.
Data Sources: Databases were searched in November 2023, including PubMed, Web of Science, Embase, CINAHL, Cochrane Library and CNKI (China National Knowledge Infrastructure).
Orphanet J Rare Dis
January 2025
Institute for Inherited Metabolic Disorders, Paracelsus Medical University Salzburg, 5020, Salzburg, Austria.
Background: Mucopolysaccharidosis (MPS) are a group of lysosomal storage diseases with substantial unmet medical needs-for both patients and caregivers. Approved therapies are limited, and the perception of investigative ones remains enigmatic.
Method: Using an innovative survey concept based on the discrete choice experiment method (DEC) with neuronopathic and non-neuronopathic patient scenarios, we aimed to evaluate how parents of children with MPS perceive different approved and innovative therapies.
BMC Nurs
January 2025
Department of Nursing and Physiotherapy, University of the Balearic Islands, Palma, Balearic Islands, Spain.
Background: Since the declaration of the COVID-19 pandemic in March 2020 and throughout the health crisis, health authorities recommended restriction measures to minimize the risk of contagion and avoid the collapse of health centers. The restrictive health and safety measures conditioned the way in which patients were cared for, as well as their social and family life. The purpose of the study was to explore patients and caregivers' perception of family care and support during hospitalization in the context of the COVID-19 pandemic in a Manacor hospital.
View Article and Find Full Text PDFInt J Eat Disord
January 2025
Division of Gastroenterology, Hepatology, and Nutrition, Boston Children's Hospital, Boston, Massachusetts, USA.
Background: Patient and caregiver perspectives are critical in the evaluation of avoidant/restrictive food intake disorder (ARFID); however, little is understood about how caregiver and youth perceptions may differ. This study compared caregiver and youth reports among pediatric patients from an outpatient ARFID program.
Methods: Patients (217 individuals with ARFID, aged 8-17) and their caregivers completed the Nine-Item ARFID Screen (NIAS), a screening tool with parallel youth and caregiver report forms.
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