This article is a call for action to the relevant stakeholders to improve access to care and treatment for patients with rare diseases in the Asia-Pacific region by looking into three main areas: (a) developing legislative definitions to confer enforceable protection, (b) creating or strengthening policies by objectively measuring the impact brought about by rare diseases and establishing platforms to reach out to the rare disease community, and (c) fostering collaboration across sectors and countries. It is hoped that these suggested actions can catalyze discussions and progress in the region.
Download full-text PDF |
Source |
|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4172816 | PMC |
| http://dx.doi.org/10.1186/s13023-014-0137-1 | DOI Listing |
Publication Analysis
Top Keywords
rare diseases
12
call action
8
improve access
8
access care
8
care treatment
8
treatment patients
8
patients rare
8
diseases asia-pacific
8
asia-pacific region
8
action improve
4
Similar Publications
Want AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!