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Insights From Diverse Perspectives on Social Media Messages to Inform Young Adults With Cancer About Clinical Trials: Focus Group Study.
JMIR Form Res
January 2025
Department of Epidemiology, Columbia University Mailman School of Public Health, New York, NY, United States.
Background: Low rates of adolescent and young adult (YA; aged 15-39 y) clinical trial enrollment (CTE), particularly among underserved groups, have resulted in a lack of standardized cancer treatments and follow-up guidelines for this group that may limit improvement in cancer treatments and survival outcomes for YAs.
Objective: To understand and address unique barriers to CTE, we conducted focus groups to learn about informational, financial, and psychosocial needs of YAs surrounding CTE and identify strategies to address these barriers.
Methods: We conducted 5 focus groups in 2023 among a diverse sample of YA patients from across the United States.
Exploring Literacy and Knowledge Gaps and Disparities in Genetics and Oncogenomics Among Cancer Patients and the General Population: A Scoping Review.
Healthcare (Basel)
January 2025
Centre for Research and Technology Hellas, Institute of Applied Biosciences, 57001 Thessaloniki, Greece.
Background: Genetic and genomic literacy is pivotal in empowering cancer patients and citizens to navigate the complexities of omics sciences, resolve misconceptions surrounding clinical research and genetic/genomic testing, and make informed decisions about their health. In a fast-evolving scenario where routine testing has become widespread in healthcare, this scoping review sought to pinpoint existing gaps in literacy and understanding among cancer patients and the general public regarding genetics and genomics.
Methods: Adhering to the PRISMA framework, the review included 43 studies published between January 2018 and June 2024, which evaluated the understanding of genetics and genomics among cancer patients, caregivers, and citizens.
Predictors of insecticide-treated nets utilization among children under five years in refugee settlements in Uganda: analysis of the 2018-2019 Uganda Malaria Indicator Survey.
Malar J
January 2025
Department of Geography, Geo-Informatics and Climatic Sciences, Makerere University, P.O Box 7062, Kampala, Uganda.
Background: Despite significant distribution of insecticide-treated net (ITNs) by the Government of Uganda to refugees, malaria is major cause of mortality and morbidity among children under five years in refugee settlements. This highlights the persistent challenges and complexities surrounding malaria control and prevention efforts in these settings. Studies that focus on the determinants of ITN utilization among children under five years in refugee settlements in Uganda are not available.
View Article and Find Full Text PDFPalliative care for end-stage liver disease and acute on chronic liver failure: A systematic review.
World J Methodol
December 2024
Post-Graduate Program, Acute Medicine, University of South Wales, Cardiff CF37 1DL, United Kingdom.
Background: End stage liver disease (ESLD) represents a growing health concern characterized by elevated morbidity and mortality, particularly among individual ineligible for liver transplantation. The demand for palliative care (PC) is pronounced in patients grappling with ESLD and acute on chronic liver failure (ACLF). Unfortunately, the historical underutilization of PC in ESLD patients, despite their substantial needs and those of their family caregivers, underscores the imperative of seamlessly integrating PC principles into routine healthcare practices across the entire disease spectrum.
View Article and Find Full Text PDFIntrauterine Device Use and Perceptions Among Women in Tanzania-A Mixed Methods Study.
SAGE Open Nurs
December 2024
Institute of Nursing and Health Promotion, OsloMet - Oslo Metropolitan University, Oslo, Norway.
Introduction: The intrauterine device (IUD) represents the most cost-effective, long-acting reversible form of contraception, but accounts for only 1% of all contraception methods used in Tanzania.
Objective: This study aims to determine the uptake of IUD use and investigate the perceptions, challenges, and recommendations surrounding the use of intrauterine devices among women of reproductive age in Tanzania.
Method: A cross-sectional study was conducted including 347 women, as well as qualitative semi-structured interviews with 11 women.
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