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| http://dx.doi.org/10.1038/bmt.2014.118 | DOI Listing |
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Impact of pediatric tracheostomy on family caregivers' burden and quality of life: a systematic review and meta-analysis.
Front Public Health
January 2025
Department of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore.
Introduction: The incidence of pediatric tracheostomy is on the rise. More children are undergoing tracheostomy at a younger age and living longer and cared for at home. Caring for children with tracheostomy affects the caregivers' Quality of Life (QOL) and caregiver burden.
View Article and Find Full Text PDFKnowledge and Attitudes of Patients with Rheumatoid Diseases towards Biosimilars.
Mediterr J Rheumatol
December 2024
PanHellenic Federation of Patients, Parents, Caregivers and Friends of Children with Rheumatic Diseases (RHEUMAZIN), Athens, Greece.
Objective: To assess patients' understanding and attitudes towards biosimilars in rheumatoid diseases in Greece.
Methods: A convenience sample of patients with rheumatoid diseases who were members of the largest rheumatoid patient association (RHEUMAZIN) in Greece was selected for this survey. Data on patients' knowledge and attitudes towards biosimilars were collected with a web-based questionnaire.
Transition of Care Challenges and Opportunities for Chronic Wounds.
Nurs Clin North Am
March 2025
Senior Care Clinic House Calls, Sacramento, CA, USA; Care Home by RNs, Sacramento, CA, USA; Care Home by RNs, Houston, TX, USA; Betty Irene Moore School of Nursing, University of California, Davis, Sacramento, CA, USA. Electronic address:
The transition of care (TOC) from acute to community-based settings presents significant challenges, especially for patients with chronic wounds. Effective communication and standardized discharge planning are critical to prevent readmissions and adverse events. This article explores the complexities of TOC, the role of skilled nursing and community-based long term care facilities, and the importance of interdisciplinary team approaches in wound care.
View Article and Find Full Text PDFQualitative study exploring the views and perceptions of parents/carers of young children with CF regarding the introduction of CFTR modulator therapy (The REVEAL study; PaRents pErspectiVEs of KAftrio in chiLdren aged 2-5).
BMJ Open Respir Res
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Alder Hey Children's NHS Foundation Trust, Liverpool, UK.
Background: Cystic fibrosis (CF) is associated with a historically high treatment burden which causes anxiety and exhaustion for parents of children with CF, especially in the early years of a child's life. Recently, a new medication, elexacaftor/tezacaftor/ivacaftor (ETI), has become available to some people with CF, which has had a significant impact on the quality of life of older children and adults. This medication will soon be available for children ages 2-5 in the UK.
View Article and Find Full Text PDFUser-Oriented Requirements for Artificial Intelligence-Based Clinical Decision Support Systems in Sepsis: Protocol for a Multimethod Research Project.
JMIR Res Protoc
January 2025
Institute for Health Care Management and Research, University of Duisburg-Essen, Essen, Germany.
Background: Artificial intelligence (AI)-based clinical decision support systems (CDSS) have been developed for several diseases. However, despite the potential to improve the quality of care and thereby positively impact patient-relevant outcomes, the majority of AI-based CDSS have not been adopted in standard care. Possible reasons for this include barriers in the implementation and a nonuser-oriented development approach, resulting in reduced user acceptance.
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