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People living with chronic pain in Canada face difficult decisions and decisional conflict concerning their care: data from the national DECIDE-PAIN survey.
BMC Prim Care
December 2024
Université de Sherbrooke, Faculty of Medecine and Health Sciences, School of Rehabilitation, Research Centre of the CHUS, CIUSSS de l'Estrie-CHUS, Sherbrooke, Canada.
Background: Shared decision-making is an imperative in chronic pain care. However, we know little about the decision-making process, especially in primary care where most chronic pain care is provided. We sought to understand decisional needs of people living with chronic pain in Canada.
View Article and Find Full Text PDFRespectful care for postpartum women with sickle cell disease: a netnographic study.
Rev Bras Enferm
December 2024
Universidade Estadual de Feira de Santana. Feira de Santana, Bahia, Brazil.
Objectives: to analyze principles of respectful maternity care in narratives of postpartum women with sickle cell disease, relating them to Sustainable Development Goals.
Methods: netnographic study, with two videos published in 2020. Deductive iconographic and thematic analysis by Respectful Maternity Care Charter, organized in MAXQDA.
Unjustified Partiality or Impartial Bias? Reckoning with Age and Disability Discrimination in Cancer Clinical Trials.
J Law Med Ethics
December 2024
ERASMUS SCHOOL OF LAW, ROTTERDAM, THE NETHERLANDS.
The exclusion of the elderly and people with disabilities from cancer clinical research without appropriate justification is discriminatory and is at odds with the ethos of EU principles, laws and research regulations. It further limits study generalizability. Several primary EU laws fronted by the European Charter prohibit engaging in disparate impact discrimination on the grounds of age and disability in all of EU tasks.
View Article and Find Full Text PDFExploring patients' rights awareness and implementations amongst hospitalized patients in Northern Palestine: insights from a local perspective.
BMC Med Ethics
November 2024
Department of Medicine, Faculty of Medicine and Health Sciences, An-Najah National University (www.najah.edu), Box 7, 707, Nablus, Palestine.
Background And Aim: Promoting ethical medical practices and preserving human rights principles require an understanding of patient rights. Studies show varying awareness levels among patients regarding their rights. This study aims to assess the level of awareness among patients in Palestine about their rights and the compliance of healthcare professionals.
View Article and Find Full Text PDFObjective: This transformative multiphase mixed-methods study aimed to identify the thematic structure of school-based adverse racialized experiences (AREs), their prevalence, and perpetrators in the retrospective K-12 accounts of a sample of racially diverse undergraduate students aged 17-22.
Method: Interpretative analysis of interviews in Phase I informed the design of a vignette survey in Phase II. Qualitative and quantitative methods identified convergent patterns of school-based AREs under the three themes: racial discrimination, racial microaggressions, and racial harassment.
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