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A Pilot Study on the Freelisting Method Among Adolescents with Chronic Musculoskeletal Pain: Feasibility, Acceptability and Study Findings.
Children (Basel)
December 2024
PolicyLab, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.
: To assess the feasibility and acceptability of freelisting for adolescents with chronic musculoskeletal pain (CMP) and use freelisting to identify how adolescents with CMP cope with pain. : This was a mixed-methods cross-sectional single-center study of patients 12-18 years old, diagnosed with CMP. Twenty-seven subjects participated in an interview which included the freelisting exercise, probing questions, Connor-Davidson Resilience Scale 10-item, and semi-structured interview.
View Article and Find Full Text PDF"Using dried blood spots beyond newborn screening - is Hong Kong ready?": navigating the intersection of innovation readiness, privacy concerns, and Chinese parenting culture.
BMC Public Health
October 2024
Metabolic Medicine Unit, Department of Paediatrics and Adolescent Medicine, Hong Kong Children's Hospital, Hong Kong SAR, China.
Background: Newborn screening programmes offer an opportunity to obtain dried blood spots (DBS) cards that contain a wealth of biological information that can be stored for long periods and have potential benefits for research and quality assurance. However, the storage and secondary uses of DBS cards pose numerous ethical, clinical, and social challenges. Empirical research exploring public attitudes is central to public policy planning as it can indicate whether or not there is broad public support, define public concerns, and ascertain the circumstances required to alleviate concerns and ensure support.
View Article and Find Full Text PDFAssessing the Disruption of Health Services During the COVID-19 Pandemic Among Adults Living With HIV by Age in Essex County, NJ: A Cross-Sectional Study.
J Assoc Nurses AIDS Care
October 2024
Kristen D. Krause, PhD, MPH, is an Assistant Professor, Rutgers School of Public Health, Newark, New Jersey, USA. Anita G. Karr, MPH, is a Research Coordinator, Columbia University Mailman School of Public Health, New York, New York, USA. Juhi Aggarwal, MPH, is a Teaching Research Specialist, Rutgers School of Public Health, Piscataway, New Jersey, USA. Sanjana Subramhanya, MPH, is a Regional Epidemiologist, New Jersey Department of Health, Trenton, New Jersey, USA. Michelle DallaPiazza, MD, is an Associate Professor, New Jersey Medical School, Newark, New Jersey, USA. Shobha Swaminathan, MD, is an Associate Professor, New Jersey Medical School, Newark, New Jersey, USA. Pamela Valera, PhD, MSW, is an Assistant Professor, Rutgers School of Public Health, Newark, New Jersey, USA. Perry N. Halkitis, PhD, MS, MPH, is Hunterdon Professor of Public Health & Health Equity, Rutgers School of Public Health, Newark, New Jersey, USA. Stephanie Shiau, PhD, MPH, is an Assistant Professor, Rutgers School of Public Health, Piscataway, New Jersey, USA.
At the onset of the COVID-19 pandemic, clinicians and researchers were concerned about its impact on the health of people living with HIV (PLWH). Although mitigation measures during the early part of the pandemic used telehealth, it was uncertain whether PLWH would be amenable to this type of care and whether health outcomes would be affected. PLWH actively seeking treatment at a large urban outpatient practice in Essex County, New Jersey, were interviewed from October 2020 to June 2021 about their health-related experiences during COVID-19.
View Article and Find Full Text PDFDevelopment, implementation and usefulness of an intervention to support psychological resilience during the COVID-19 pandemic: a study from a Swedish hospital based on interviews, documents and a survey.
BMJ Open
August 2024
Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden, Karolinska Institutet, Stockholm, Sweden
Objectives: A range of interventions to support psychological resilience among healthcare workers were provided in hospitals during the COVID-19 pandemic. Most research has focused on the content and experience of these interventions, but less is known about their implementation. The aim of this study was to increase understanding of the development, implementation and perceived usefulness of an intervention to support psychological resilience among healthcare workers at a Swedish hospital during the pandemic.
View Article and Find Full Text PDFUnravelling Elements of Value of Healthcare and Assessing their Importance Using Evidence from Two Discrete-Choice Experiments in England.
Pharmacoeconomics
October 2024
Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.
Background: Health systems are moving towards value-based care, implementing new care models that allegedly aim beyond patient outcomes. Therefore, a policy and academic debate is underway regarding the definition of value in healthcare, the inclusion of costs in value metrics, and the importance of each value element. This study aimed to define healthcare value elements and assess their relative importance (RI) to the public in England.
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