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Recruitment, follow-up and survival in an 11-country cohort study of patients at the end of life and their relatives.
PLoS One
January 2025
Institute for Palliative Care, Region Skåne and Department of Clinical Sciences Lund, Lund University, Lund, Sweden.
Background: Large, international cohort studies generate high-level evidence, but are resource intense. In end-of-life care such studies are scarce. Hence, planning for future studies in terms of data on screening, recruitment, retention and survival remains a challenge.
View Article and Find Full Text PDFProtracted Tuberculosis Outbreak in a Pasifika Diaspora in Western Sydney, Australia: The Importance of Community Engagement.
J Infect Dis
January 2025
Sydney Infectious Diseases Institute, The University of Sydney, Camperdown, New South Wales, Australia.
A prolonged tuberculosis outbreak, linked by whole-genome sequencing, occurred in a Pasifika extended family over 10 years (2013-2022) in Sydney, Australia. Despite Australia's low tuberculosis incidence, social and cultural complexities, and coronavirus disease 2019 (COVID-19) disruptions exacerbated transmission. Control required culturally sensitive, family-centered care and robust health system engagement.
View Article and Find Full Text PDFDeveloping Topics.
Alzheimers Dement
December 2024
Xi'an Jiaotong-Liverpool University, Suzhou, Jiangsu, China.
Background: Alzheimer's disease poses a growing health crisis in China, exacerbated by the country's rapidly aging population and cultural emphasis on family-based care. Caregivers shoulder immense physical and psychological burdens, often struggling to reconcile personal expectations with the demands of caregiving.
Method: This study based on ethnographic data collected through prolonged engagements with a family in urban China caring for an adult diagnosed with Alzheimer's disease, explores the application of Role Theory.
Development and formative evaluation of website-based tool to support healthy lifestyles in family day care.
Health Promot J Austr
January 2025
School of Health and Society, Faculty of the Arts, Social Sciences and Humanities, University of Wollongong, Wollongong, New South Wales, Australia.
Issue Addressed: Nutrition and physical activity practices in Australian family day care are suboptimal. A web-based tool was co-developed with family day care service providers and educators, health promotion staff and the New South Wales Ministry of Health to promote healthier nutrition and physical activity practices through an existing quality improvement process.
Methods: Formative evaluation was conducted in January-February 2023.
A blended learning approach for capacity strengthening to improve the quality of integrated HIV, TB, and malaria services during antenatal and postnatal care in LMICs: a feasibility study.
BMC Med Educ
January 2025
Department of International Public Health, Emergency Obstetric and Quality of Care Unit, Liverpool School of Tropical Medicine, Pembrooke Place, L3, 5QA, Liverpool, UK.
Background: The blended learning (BL) approach to training health care professionals is increasingly adopted in many countries because of high costs and disruption to service delivery in the light of severe human resource shortage in low resource settings. The Covid-19 pandemic increased the urgency to identify alternatives to traditional face-to-face (f2f) education approach. A four-day f2f antenatal care (ANC) and postnatal care (PNC) continuous professional development course (CPD) was repackaged into a 3-part BL course; (1) self-directed learning (16 h) (2) facilitated virtual sessions (2.
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