AI Article Synopsis
- The objective of the study was to explore how patients' experiences with chronic diseases can be captured and used to enhance health outcomes, reduce costs, and improve quality of life.
- The research involved reviewing 66 relevant publications to identify mechanisms that facilitate patient involvement in healthcare decision-making and information sharing.
- Ten different mechanisms were found, each varying in effectiveness, with a conclusion that adequate mechanisms can empower patients to significantly improve chronic disease management and indicate a need for further research on optimizing these mechanisms.
Article Abstract
Objective: To identify and examine mechanisms through which patients' experiences of chronic disease can be accessed, understood, and used to improve outcomes, health care costs, and quality of life for individual patients.
Study Design And Setting: Interpretive synthesis of the research literature on chronic disease and associated areas of clinical practice and service development. Searches of electronic databases (MEDLINE, EMBASE, and British Nursing Index), Internet searches, and snowballing techniques identified 66 relevant publications. The analysis focused on identifying mechanisms; their strengths, weaknesses, and impact.
Results: Ten mechanisms were identified, each with differing potential to access and reach patients; involve patients in decisions about what information is important; enable patients to share experiences/expertise and validate their knowledge; allow professionals and patients to deliberate and build understanding; support shared decision-making, continuity/partnership development, and potential to use patients' experiences. The extent to which patients' experiences led to improved outcomes, health care costs, or quality of life related to the aims of individual studies.
Conclusion: Patients can contribute to improving the design and delivery of chronic disease health care and research if appropriate mechanisms are in place. There is a need for future research about optimal configurations of mechanisms and links between mechanisms across health care and research.
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| http://dx.doi.org/10.1016/j.jclinepi.2012.12.019 | DOI Listing |
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