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A Cross Cultural Understanding of Diverse Dementia Journeys.
Alzheimers Dement
December 2024
Otsuka America Pharmaceutical Inc., Princeton, NJ, USA
Background: Over the past 3 years, the Global Council on Alzheimer’s Disease (GCAD) has conducted research on lived experience and care partner journeys. Specifically, this research has focused on the experiences of individuals from historically underrepresented populations, including LGBTQ+, Black, Hispanic/Latino, and Asian communities. The goal has been to identify how these journeys might diverge across communities, understand various nuances that exist across cultures, and recognize the impact these might have on seeking diagnosis, care, and support.
View Article and Find Full Text PDFPerspectives from Underrepresented Patients and Families Following Biomarker‐Informed ADRD Diagnoses: Insights from the PARADE Study.
Alzheimers Dement
December 2024
University of Pittsburgh, Pittsburgh, PA, USA
Background: As the landscape of ADRD diagnoses evolves to include biomarker testing, there is a pressing need to understand the unique experiences, challenges, and support needs of families undergoing evaluations of cognitive decline, particularly in a manner that prioritizes cultural considerations from voices historically underrepresented in ADRD research. The current study aims to understand the AD biomarker disclosure journey of persons from underrepresented groups with the goal of informing culturally responsive approaches to the care of patients and their families navigating the complexities of ADRD diagnoses.
Method: Virtual focus groups are being conducted over a secure video conferencing platform, with a trained facilitator guiding the discussion.
From the Voices of Black Dementia Caregivers: The Need for Culturally Responsive Education on Navigating Care.
Alzheimers Dement
December 2024
Emory University, Atlanta, GA, USA
Background: Among Black caregivers of persons living with Alzheimer’s disease and related dementias (ADRD), the overlay of health disparities and systemic discrimination substantially contribute to heightened adverse health outcomes. Black dementia caregivers report experiencing challenges in providing care that may be exacerbated by them receiving fewer support services and having more unmet needs compared to their racial counterparts. Furthermore, historical systemic failures and disadvantages impacting Black dementia caregivers contribute to long‐established stressors and vulnerabilities.
View Article and Find Full Text PDFStavros Niarchos Park Walk for people with dementia: Memory and Senses.
Alzheimers Dement
December 2024
Athens Alzheimer Association, Athens, Attica, Greece
There are 160.000 people living with dementia and 280.000 with Mild Cognitive Impairment (MCI) in Greece.
View Article and Find Full Text PDFRepresentations of in vitro fertilization in the first cycle of IVF in women.
Health Psychol Behav Med
December 2024
Faculty of Medicine, University of Niš, Niš, Serbia.
Introduction: Women typically experience more intense stress related to infertility compared to men, which is partly connected to the importance that motherhood and parenthood have for women in most societies. Considering the dominance of pronatalism in the majority of cultures, it is not surprising that women, who are most often considered responsible for reproduction, suffer greater social and psychological pressure due to infertility.
Method: The study employs a social constructionist framework to explore how women facing infertility construct their notions of their first IVF treatment.
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