This study reports the development of The Hearing Parents' Perceptions of Health Professionals' Advice Questionnaire (HPP/HPQ). This questionnaire was designed to investigate the impact of the advice and information that parents receive from health professionals during the time when their child's hearing loss is identified and how parents, in turn, make initial decisions about services and interventions for their deaf child. Once developed, the HPP/HPQ was partially validated on 2 separate samples. Analysis of data from both samples supported a 14-item questionnaire, with all items loading onto a single composite factor. The implications of how this tool can be used to both help improve health professionals' services and gain an understanding of how the relationship between hearing parents and health professionals might influence developmental outcomes in deaf children are discussed.
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http://dx.doi.org/10.1093/deafed/ens041 | DOI Listing |
Afr J Disabil
December 2024
Department of Audiology, Faculty of Human and Community Development, University of the Witwatersrand, Braamfontein, South Africa.
Background: Parents of Deaf or hard-of-hearing (DHH) children are faced with a plethora of overwhelming decisions concerning their children, particularly during the early stages of development. Among these decisions are those concerning assistive devices and the modes of communication for their child.
Objectives: The aim of this study was to explore the perceptions of parents of DHH children towards the various modes of communication for their children within the South African context.
J Intellect Dev Disabil
January 2025
Child Development Unit, Children's Hospital at Westmead, Westmead, Australia.
Background: Children and adolescents with cerebral palsy (CP) commonly have behaviour problems. The present study aimed to determine which of the most common clinical features experienced by children and adolescents with CP and intellectual disability are associated with behaviour problems.
Method: We investigated 11 possible associated variables including epilepsy, visual and hearing impairments, motor difficulties, communication and speech difficulties, pain, sleep disturbance, executive function (EF) deficits, type of CP, and parent stress.
Orphanet J Rare Dis
January 2025
Department of Voice, Speech and Hearing Disorders, University Dysphagia Center, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Background: Bulbar function is frequently impaired in patients with spinal muscular atrophy (SMA). Although extremely important for the patient's quality of life, it is difficult to address therapeutically. Due to bulbar dysfunction, maximum mouth opening (MMO) is suspected to be reduced in children with SMA.
View Article and Find Full Text PDFPLoS One
January 2025
Department of Psychology, Muslim Youth University, Islamabad, Pakistan.
Parental history of schizophrenia, a complex and multifaceted psychological disorder, is recognized as a well-established risk factor in the development of the disorder among offspring. However, the developmental patterns of such children and adolescents before the onset of the problem have not yet been systematically documented. We present a comprehensive account of developmental checkpoints essential for preventing it from occurring.
View Article and Find Full Text PDFBMC Oral Health
January 2025
Department of Orthodontics, Faculty of Dentistry, Alexandria University, Alexandria, Egypt.
Objective: Dental occlusion and the alignment of the dentition play crucial roles in producing speech sounds. The Arabic language is specifically complex, with many varieties and geographically dependent dialects. This study investigated the relationship between malocclusion and speech abnormalities in the form of misarticulations of Arabic sounds.
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