Objective: To analyze and report the differences in perceptions of physicians and advance practice nurses, their comfort in providing and referring neonatal patients to perinatal palliative care (PPC), and their confidence in delivering such care.
Design: A cross-sectional survey design using the Perinatal Palliative Care Perceptions and Barriers Scale.
Setting: A survey was administered using Qualtrics, a Web-based tool. Recruitment was completed via e-mail invitation and list servs.
Participants: Physicians (n = 66), advance practice nurses (n = 146), and other clinicians (n = 90).
Methods: t test and Mann-Whitney U were used to examine differences in clinician perspectives, comfort, and confidence in delivering PPC. Hierarchical multiple regression was used to test the hypothesis that clinician perceptions, barriers to PPC, years in clinician practice, referral comfort, and personal comfort and case history explain variation in confidence.
Results: Physicians and nurses have fundamentally similar perspectives but report significant differences in their comfort with providing and referring patients to PPC and their confidence in delivering such care. There was a significant regression equation with an overall R(2) of .56 explained variation in confidence.
Conclusion: Palliative care involves physicians and nurses making unique and positively synergistic contributions to the care of families expecting an infant with a life-limiting diagnosis. Clinicians share ethical perspectives regarding PPC and are positioned to collaboratively develop PPC programs. Barriers to PPC delivery exist and clinicians can benefit from interventions aimed at modifying practice environments. Supportive interventions and educational initiatives may increase clinician comfort and confidence with palliative care delivery.
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http://dx.doi.org/10.1111/j.1552-6909.2012.01432.x | DOI Listing |
Am J Hosp Palliat Care
January 2025
VA Quality Improvement Resource Center for Palliative Care, VA Palo Alto Health Care System, Palo Alto, CA, USA.
Purpose: To determine the feasibility of mapping interdisciplinary role ownership over actionable practices identified from qualitative comments in the Veterans Affairs Bereaved Family Survey (BFS).
Methods: We polled two providers from each of 14 disciplines as to whether an actionable practice that improved end-of-life care quality sits within their scope of practice. We grouped practices by having the greatest, middle, and fewest number of disciplines that claimed role ownership and then characterized what roles were shared.
JAMA Oncol
January 2025
MERI Center for Education in Palliative Care, University of California San Francisco, San Francisco.
Support Care Cancer
January 2025
Duke-NUS Medical School, Lien Centre for Palliative Care, 8 College Road, Level 4, Singapore, 169857, Singapore.
Purpose: This study investigates whether cancer-related stigma and pain among patients with advanced cancer influences their perceptions of receiving responsive care.
Methods: We surveyed 2138 advanced cancer patients from 11 hospitals in eight Asian countries. Participants rated their most recent healthcare visit and a hypothetical patient's experience described in vignettes concerning dignity, clarity of information, and involvement in decision-making.
Patients with end-stage renal disease face numerous physical, emotional, and financial burdens, necessitating palliative care (PC) interventions. This cross-sectional study assessed the problems and unmet needs of 129 patients under renal dialysis from 6 hospitals. Findings revealed that 64.
View Article and Find Full Text PDFHealth Sociol Rev
January 2025
School of Social Sciences, University of New South Wales, Sydney, Australia.
Comfort is a central aspect of palliative care, encompassing the management of pain and symptoms, as well as how people feel and experience care. Comfort has been argued to be especially tenuous or transient in palliative care, as a constantly shifting set of bodily sensations and relations are anticipated and cared for. In this article, drawing on in-depth interviews and photo elicitation, we explore the accounts of patients, family carers, staff and volunteers from a palliative care service in Australia, to understand how care is configured and facilitated through everyday gestures of comfort.
View Article and Find Full Text PDFEnter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!