Background: Despite the frequency with which mothers with intellectual disability have their children removed, little theoretical or empirical work has understood the mothers' perspectives on this. A few studies have reported mothers' feelings of grief and loss and their sense of powerlessness in the child protection system.
Method: This qualitative study explores the daily life narratives of 7 mothers with intellectual disability following the involuntarily removal of their children.
Results: For most mothers, having a child removed was not a one-off experience. The serial nature of the experience yielded 3 different narratives, lived out in different ways. In some cases, women told a different narrative for each of their removed children. All women remained focused on their children in care.
Conclusions: The multiple and varied narratives of mothers with intellectual disability who have children in care suggest that their support needs may differ from each other and over time. How their support needs might best be met remains an unanswered question. Further research is also needed to identify any adverse health and social consequences for mothers with children in care as well as the effects on their children.
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http://dx.doi.org/10.3109/13668250.2012.673574 | DOI Listing |
BMC Pediatr
January 2025
Pediatric Internal Medicine, Yantai Yuhuangding Hospital, No.20 Yuhuangding East Road, Zhifu District, Yantai City, Shandong, 264000, China.
Background: Common clinical findings in patients with 19p13.3 duplication include intrauterine growth restriction, intellectual disability, developmental delay, microcephaly, and distinctive facial features. In this study, we report the case of a patient with 19p13.
View Article and Find Full Text PDFFront Child Adolesc Psychiatry
September 2024
Department of Pediatrics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States.
Objectives: The prevalence of many psychiatric symptoms, including anxiety and depression, is higher in individuals born extremely preterm (EP) than in term-born individuals during childhood and adolescence. In this prospective study of adolescents born EP, we examined associations between early-life risk factors (prenatal maternal health conditions, socioeconomic and social factors) and anxiety and depression at 15 years of age.
Methods: We included 682 participants (53.
J Intellect Dev Disabil
September 2024
Tranzo, Tilburg School of Social and Behavioural Sciences, Tilburg University, Tilburg, the Netherlands.
Background: Moving out of the family home is a key transition for people with intellectual disabilities and their families. Yet there has been little research about parents' experiences of planning the move of their young adult offspring to residential settings offering 24-hour support.
Method: Interviews were conducted with eleven parents whose offspring moved to residential settings within the past 5 years (five fathers; six mothers).
J Intellect Dev Disabil
December 2024
School of Health Sciences, Faculty of Medicine and Health, Örebro University, Örebro Sweden.
Introduction: There is little research regarding quality of health care for people with profound intellectual and multiple disabilities (PIMD), who often are represented by their relatives, because of their limited communication. The aim of this study was to explore experiences and perspectives of relatives regarding healthcare services for adults with PIMD.
Method: Twelve semi-structured telephone interviews were conducted involving close relatives of people with PIMD: mothers ( = 7), fathers ( = 2), brothers ( = 2) and a sister ( = 1).
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