An epilepsy community was developed on PatientsLikeMe.com to share data between patients to improve their outcomes by finding other patients like them. In a 14-day response period, 221 patients with epilepsy (mean age: 40 years, SD: 12, range: 17-72, 66% female) completed a survey about benefits they perceived. Prior to using the site, a third of respondents (30%) did not know anyone else with epilepsy with whom they could talk; of these, 63% now had at least one other patient with whom they could connect. Perceived benefits included: finding another patient experiencing the same symptoms (59%), gaining a better understanding of seizures (58%), and learning more about symptoms or treatments (55%). Number of benefits was associated with number of relationships with other patients, F(4,216)=8.173, P<0.001). Patients with epilepsy reported an array of perceived benefits similar to those reported by populations with other diseases. Controlled sharing of health data may have the potential to improve disease self-management of people with epilepsy.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1016/j.yebeh.2011.09.026 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Advancing surgical education: An evaluation of laparoscopic simulation training for medical students.
J Eval Clin Pract
February 2025
Department of Anatomy, Medical College, Jinan University, Guangdong, China.
Objective: To examine the medical students' awareness of laparoscopic surgery as well as assess the perceived importance of laparoscopic simulation training, and its impact on students' confidence, career aspirations, proficiency, spatial skills, and physical tolerance.
Design: Descriptive and comparative study using pre- and post-training assessments.
Setting: Simulation training sessions centred on laparoscopic surgery techniques.
Background: Study aims were to assess the current state and needs of faculty to inform the design of a formal mentorship program in a large academic Department of Psychiatry.
Methods: A 57- item self-administered online survey questionnaire was distributed to all faculty members.
Results: 225 faculty members completed the survey (24%).
Beliefs and perceptions towards congenital anomalies in Dilla town, Gedeo Zone, Southern Ethiopia; a qualitative study.
BMC Pediatr
January 2025
School of Public Health, College Of Health Sciences and Medicine, Dilla University, Dilla, Ethiopia.
Article Synopsis
- The study focuses on exploring community beliefs and perceptions regarding congenital anomalies in Dilla town, Southern Ethiopia, where understanding is limited and often influenced by socio-cultural and religious factors.
- Participants attributed congenital anomalies to various causes, including divine punishment, curses, magical practices, and lack of proper maternal care, indicating a general lack of knowledge about medical explanations.
- The findings underscore the need for improved education and awareness regarding congenital anomalies to mitigate their social, economic, and psychological impacts on affected families.
[The challenges of new digital technologies on the Moroccan health system : Case of the cardiology departement -B- University Hospital Center Ibn Sina Rabat].
Ann Cardiol Angeiol (Paris)
January 2025
Faculte des Sciences Juridiques, Economiques et Sociales, Département d'Economie et de Gestion, Souissi, Rabat, Maroc.
Introduction: We live in the era of information technology (IT) innovations in the health sector, this has led to the appropriation of new organizational models which are profoundly changing the practice of medicine. Our study aims to determine the challenges of new digital technologies in the Moroccan health system, the case of the cardiology department - B - of the Ibn Sina University Hospital Center.
Materials And Methods: This is a single-center observational descriptive-analytical study carried out at the level of the cardiology department - B- for 6 months, from September 1, 2022.
Evaluating the effect of a non-linguistic cognitive intervention on functional communication in global aphasia: A case series study.
Int J Lang Commun Disord
January 2025
Department of Language and Cognition, University College London, London, UK.
Background: Global aphasia is a severe communication disorder affecting all language modalities, commonly caused by stroke. Evidence as to whether the functional communication of people with global aphasia (PwGA) can improve after speech and language therapy (SLT) is limited and conflicting. This is partly because cognition, which is relevant to participation in therapy and implicated in successful functional communication, can be severely impaired in global aphasia.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!