The Framework for Respite in Partnership with Parents (FRiPP), developed by the Jessie May Trust is a tool to enable a standardised and equitable allocation of a limited resource. FRiPP reduces the opportunity for subjective allocation of respite-based care stemming from the professional-led model of telling families what they need. The tool is aimed at engaging families in identifying and articulating the support they require. After a successful pilot and evaluation, FRiPP is now used for all families on the Jessie May Trust's caseload. The authors reflect on the tool's development and implementation process in the context of promoting and protecting partnership working.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.7748/ncyp2011.07.23.6.14.c8598 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Navigating a New Normal: A Qualitative Look at Long-Term Care Planning for Children with Intellectual Disabilities Post-COVID-19.
Healthcare (Basel)
December 2024
Hong Chi Winifred Mary Cheung Morninghope School, 220 Lai King Hill Road, Kwai Chung, Hong Kong, China.
Family caregivers of individuals with intellectual disabilities (ID) face numerous challenges in long-term planning, which have been exacerbated amidst the COVID-19 pandemic. Specific triggers raise awareness of future planning needs, but barriers like painful emotions and exhaustion often impede the process. This study aimed to explore Hong Kong (HK) caregivers' perspectives on long-term planning for family members with ID at the later period of the pandemic.
View Article and Find Full Text PDFCaregivers' experiences, challenges, and needs in caring for people with dementia in India: a scoping review.
BMC Health Serv Res
December 2024
Department of Nursing and Health Promotion, Faculty of Health Sciences, Oslo Metropolitan University, PB 4 St. Olavs Plass, N - 0130, Oslo, Norway.
Background: As the world's most populous country, India faces a growing challenge in addressing dementia, in which advancing age remains the strongest risk factor. Approximately 8.8 million Indians over the age of 60 are currently affected by this condition.
View Article and Find Full Text PDFSocial worlds of Appalachian women caregivers of older relatives living with dementia.
Front Glob Womens Health
December 2024
Human Development and Family Science, Virginia Tech, Blacksburg, VA, United States.
Rationale: Over 11 million people in the United States provide care for an older family member with dementia, with this responsibility primarily falling on daughters and wives. In Appalachia, a mountainous region in the U.S characterized by close families, family members were crucial to ensuring that care needs were met for people living with dementia during the COVID-19 pandemic.
View Article and Find Full Text PDFThe interactivity and independence of Recovery challenges and coping strategies for ICU survivors and their caregivers: a systematic review and Meta-synthesis.
BMC Nurs
December 2024
Department of Surgical Intensive Care Unit, Shandong Provincial Hospital Affiliated to Shandong First Medical University, #246 JingWu Road, Jinan, 250021, China.
Background: The post-ICU home recovery period requires patients and caregivers to confront recovery challenges and adopt coping strategies as a family dyad, necessitating effective dyadic interaction patterns. Existing qualitative research shows that the dyads face interactive or independent challenges and employs varying coping strategies, which may include strong communication or, conversely, avoidance. However, a single qualitative study alone might offer limited generalizability, and there is a lack of broader, more nuanced understanding about the recovery challenge and copings among ICU survivors and caregivers.
View Article and Find Full Text PDFTransitional Care for Spinal Cord Injuries in Hong Kong SAR, China: A Narrative Review of the Local Experience.
Healthcare (Basel)
November 2024
SAHK, Hong Kong SAR, China.
Spinal cord injuries (SCI) are devastating conditions which often cause multiple permanent physical impairments and psychosocial complications. Discharge from hospital is often delayed and precious health resources are consumed. In Hong Kong SAR, China, the government welfare system and the public hospital system have worked together to address these problems through partnership with non-governmental organizations.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!