Purpose: The purpose of this qualitative study was to explore factors impacting caregiver burden and to explore possible solutions for family caregivers of terminally ill patients.
Results: The majority of caregivers reported experiencing role conflict and inadequate stress management. Caregivers who worked outside the home, those who cared for two parents concurrently, those with the least amount of outside assistance, and caregivers who spent a longer period of time caregiving reported the highest levels of health problems and overall burden. Caregivers stated a need for more support from Hospice agencies, more education on caregiver training, and more public education about Hospice services. Faith played a positive role in alleviating caregiver burden.
Conclusion: Early identification, intervention, education and coordination of services may help to alleviate caregiver burden, which will improve quality of life for both patient and caregiver.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1177/1049909111416494 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Caregiving Satisfaction, Psychological Distress and Caregiver Burden in Family Caregivers of Dependent Older People: A Longitudinal Study.
J Clin Nurs
January 2025
Department of Nursing, Faculty of Health Sciences, University of Jaén, Jaén, Spain.
Background And Objectives: Although a substantial amount of research has focused on negative aspects of caregiving, less research has been conducted investigating positive aspects of providing informal care. The aim of this study was to investigate the longitudinal association between caregiving satisfaction and psychological distress in informal carers of dependent older people, and whether this relationship is mediated by caregiver burden.
Research Design And Methods: Prospective longitudinal study with a probabilistic sample of 332 caregivers of older relatives, with data collected at baseline and at 1-year follow-up.
Determinants of Caregiver Burden Among Spouses of Patients With Kidney Failure: A Qualitative Study.
Am J Kidney Dis
January 2025
Department of Nephrology and Hypertension, University Medical Center Utrecht, Utrecht, the Netherlands.
Rationale & Objective: Spousal caregivers participate extensively in the care of patients with kidney failure. Although previous studies suggested that these caregivers experience a high burden, a comprehensive understanding of the determinants of this burden and strategies to alleviate it are needed. Therefore, this study sought to explore the contributing and alleviating determinants of burden in spousal caregivers of patients with kidney failure.
View Article and Find Full Text PDFImpact of functional re-education and environmental adaptation in cancer patients with respiratory pathology: Study protocol.
PLoS One
January 2025
Department of Nursing and Physiotherapy, University of Salamanca, Salamanca, Spain.
Background: In recent years, cancer survival rates have increased exponentially. However, this rise in survival comes with a significant drawback. As the number of treatment lines has grown, so too have the side effects, which can severely impact patients' functionality and quality of life.
View Article and Find Full Text PDFBiomarkers.
Alzheimers Dement
December 2024
Brain-Computer Interfaces team, ESPCI Paris / PSL Research University, Paris, France.
Background: It is estimated that up to 80% of people with Alzheimer's disease (AD) may have some form of anosognosia. Anosognosia also constitutes a major source of stress for caregivers as it delays diagnosis and affects compliance with treatment. Here, we aimed to explore whether and how early anosognosia and caregiver burden could independently serve as indicators for identifying patients at risk of converting to AD.
View Article and Find Full Text PDFEffective Solutions for Caregivers of Older Adults: A Review of Systematic Reviews.
J Appl Gerontol
January 2025
NewCourtland Center for Transitions and Health, University of Pennsylvania School of Nursing, Philadelphia, PA, USA.
This umbrella review aims to describe caregiver interventions tested across populations of informal caregivers of older adults and to examine the effect of caregiver interventions on depression, burden, and quality of life across intervention types and care-recipient populations. PubMed, Scopus, APA PsycInfo, ABIM, Sociological Abstracts, PAIS, and EconLit databases were systematically searched. Forty systematic reviews were identified as meeting inclusion criteria.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!