AI Article Synopsis
- Predictive testing helps people with hereditary conditions understand their health and make choices about having kids.
- Some tricky ethical problems come up for doctors and patients that can make decisions harder.
- The paper talks about five cases from Cuba showing these tough situations and suggests we need better rules to deal with them.
Article Abstract
Predictive testing protocols are intended to help patients affected with hereditary conditions understand their condition and make informed reproductive choices. However, predictive protocols may expose clinicians and patients to ethical dilemmas that interfere with genetic counseling and the decision making process. This paper describes ethical dilemmas in a series of five cases involving predictive testing for hereditary ataxias in Cuba. The examples herein present evidence of the deeply controversial situations faced by both individuals at risk and professionals in charge of these predictive studies, suggesting a need for expanded guidelines to address such complexities.
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| http://dx.doi.org/10.1007/s10897-010-9347-4 | DOI Listing |
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