In this article we show that persons with communicative disabilities are often involved in storytelling that does not necessarily conform to the conventional expectations of what constitutes a narrative. By analyzing the relationship between story and storytelling event, and the relation between what could be called the primary storyteller and the vicarious storyteller, we show that storytellers with communicative disabilities are often quite inventive in finding ways of presenting themselves as competent storytellers even though they may have certain problems vocally animating a coherent, structured story. This lead us to conclude a necessary redefinition of what a narrative is - that it could be performed as well as it could be told - and that such a redefinition stresses methodological issues: in order to be able to study the life stories of people with communicative disabilities we need to use both narrative and ethnographic research methods.
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http://dx.doi.org/10.1177/1363459310364158 | DOI Listing |
Int J Audiol
January 2025
Department of Otorhinolaryngology, Radboud University Medical Center, Nijmegen, The Netherlands.
Objective: To assess the impact of cochlear implantation (CI) and speech perception outcomes on the quality of life (QoL) of adult CI users and their communication partners (CP) one-year post-implantation.
Design: This research is part of a prospective multicenter study in The Netherlands, called SMILE (Societal Merit of Intervention for hearing Loss Evaluation).
Study Sample: Eighty adult CI users completed speech perception testing and the Nijmegen Cochear Implant Questionnaire (NCIQ).
Sensors (Basel)
January 2025
Department of Mechanical Engineering, College of Engineering, Imam Mohammad Ibn Saud Islamic University, Riyadh 11432, Saudi Arabia.
Enhancing motor disability assessment and its imagery classification is a significant concern in contemporary medical practice, necessitating reliable solutions to improve patient outcomes. One promising avenue is the use of brain-computer interfaces (BCIs), which establish a direct communication pathway between users and machines. This technology holds the potential to revolutionize human-machine interaction, especially for individuals diagnosed with motor disabilities.
View Article and Find Full Text PDFJ Clin Med
January 2025
Neurosurgery, San Giovanni Bosco Hospital, 10154 Turin, Italy.
Aneurysmal subarachnoid hemorrhage (aSAH) carries significant mortality and disability rates, with rebleeding posing a grave risk, particularly in anterior communicating artery (AcoA) aneurysms. This retrospective study aims to analyze preoperative and intraoperative variables of patients with ruptured AcoA aneurysms, evaluating the association of these variables with patient outcomes using machine learning techniques, proposing a prognostic score. : A retrospective study was conducted on 50 patients who underwent microsurgical clipping for a ruptured AcoA aneurysm at San Giovanni Bosco Hospital, Turin, Italy.
View Article and Find Full Text PDFChildren (Basel)
December 2024
PolicyLab, Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.
: To assess the feasibility and acceptability of freelisting for adolescents with chronic musculoskeletal pain (CMP) and use freelisting to identify how adolescents with CMP cope with pain. : This was a mixed-methods cross-sectional single-center study of patients 12-18 years old, diagnosed with CMP. Twenty-seven subjects participated in an interview which included the freelisting exercise, probing questions, Connor-Davidson Resilience Scale 10-item, and semi-structured interview.
View Article and Find Full Text PDFDisabil Rehabil Assist Technol
January 2025
School of Rehabilitation Therapy, Queen's University, Kingston, Ontario, Canada.
This article explores the existing research evidence on the potential effectiveness of lipreading as a communication strategy to enhance speech recognition in individuals with hearing impairment. A scoping review was conducted, involving a search of six electronic databases (MEDLINE, Embase, Web of Science, Engineering Village, CINAHL, and PsycINFO) for research papers published between January 2013 and June 2023. This study included original research papers with full texts available in English, covering all study designs: qualitative, quantitative, and mixed methods.
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