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Parent-initiated posthumous-assisted reproduction revisited in light of the interest in genetic origins.
J Med Ethics
May 2023
Department of Social and Preventive Medicine, University of Montreal, Montreal, Quebec, Canada.
A rich literature in bioethics argues against the use of anonymous gamete donation in the name of the 'interest in knowing one's genetic origins'. This interest stems from medical as well as psychosocial and identity reasons. The term 'genealogical bewilderment' has been coined to express the predicament of those deprived of access to information about their origins.
View Article and Find Full Text PDFDecision Making for Infants With Neurologic Conditions.
J Child Neurol
March 2022
Department of Pediatrics, 12277Duke University School of Medicine, Durham, NC, USA.
Parents and clinicians caring for infants with neurologic disease often make high-stakes decisions about infant care. To characterize how these decisions occur, we enrolled infants with neurologic conditions, their parents, and their clinicians in a longitudinal mixed methods study of decision making. We audio recorded family conferences as they occurred and analyzed conferences using a directed content analysis approach.
View Article and Find Full Text PDFThe Impact of the COVID-19 Epidemic During the Lockdown on Children With the Pediatric Acute-Onset Neuropsychiatric Syndrome (PANDAS/PANS): The Importance of Environmental Factors on Clinical Conditions.
Front Neurol
August 2021
Department of Pediatrics, Child Neurology Division, Sapienza University of Rome, Rome, Italy.
In March 2020, SARS-CoV-2 declared a pandemic by the World Health Organization. Restrictive isolation measures have also brought psychological distress to the pediatric population. Building on the syndrome's characteristics, the present study explored the impact of lockdown on the clinical course of young people with PANDAS/PANS.
View Article and Find Full Text PDFPatient and Visit Characteristics of Families Accessing Pediatric Urgent Care Telemedicine During the COVID-19 Pandemic.
Telemed J E Health
April 2022
Center for Health Delivery Innovation, Nemours Children's Health, Jacksonville, Florida, USA.
Telemedicine expansion during the coronavirus pandemic improved health care access for some. However, studies show disparate uptake among marginalized communities, where minority patients experience higher infection rates. We examined changes in pediatric telemedicine utilization as related to social determinants of health and characteristics of families accessing care.
View Article and Find Full Text PDFRole of parent-initiated digital imaging in paediatric clinical practice.
Arch Dis Child
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Paediatric Surgical Unit, Sheffield Children's Hospital NHS Foundation Trust, Sheffield, UK
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