Children are not just 'small adults'. They have specific physical, psychological and social requirements that must be identified and addressed to optimise their well-being in the perioperative period. The healthcare practitioner should be trained to understand the needs of the paediatric patient in hospital, including the ever increasing need to take into account cultural differences. Hospital policy should include a preoperative preparation programme, specially aimed at the paediatric population, where parental involvement is encouraged throughout.
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http://dx.doi.org/10.1177/175045891002000601 | DOI Listing |
Alzheimers Dement
December 2024
University of Cape Town, Cape Town, South Africa.
Background: Accurate assessment of cognitive impairment in low-income settings may require consideration of complex psychosocial variables (PV). Failure to consider the association of PV with biological factors, such as HIV, could lead to false classification of cognitive impairment. We investigated the impact of PV on cognitive performance in people with HIV (PWH) and without in a low-income area of Cape Town, South Africa.
View Article and Find Full Text PDFAdv Rheumatol
January 2025
Grupo de Investigación Reumavance, Facultad de Medicina, Universidad Nacional de Colombia, Bogotá, Colombia.
Introduction: Transition clinics are conceived as programs dedicated to the active, multidimensional development of a process that addresses the medical, psychosocial, educational, and vocational needs of pediatric patients suffering from a chronic disease that will persist into adulthood. Their understanding is justified in physiological, psychological, and sociocultural terms on the basis of the differential morbidity and mortality associated with a chronic disease that begins in childhood and prevails into adulthood.
Materials And Methods: Here, we reflect on the history, structure, and impact of transition clinics in pediatrics, with an emphasis on pediatric rheumatologic diseases.
BMJ Open
December 2024
School of Medicine, Keele University, Keele, UK.
Objective: The proportion of people having home dialysis for kidney disease varies considerably by treating centre, socioeconomic deprivation levels in the area and to some extent ethnicity. This study aimed to gain in-depth insights into cultural and organisational factors contributing to this variation in uptake.
Design: This is the first ethnographic study of kidney centre culture to focus on home dialysis uptake.
JIMD Rep
January 2025
United for Metabolic Diseases (UMD) The Netherlands.
Background: Inherited metabolic diseases (IMDs) may have considerable implications for patients and their families. Despite their individual rarity, covering a spectrum of over 1800 distinct diseases, the diseases collectively exert a significant impact, with often lifelong disabilities. The United for Metabolic Diseases consortium was established to catalyze research with translation into the best possible care.
View Article and Find Full Text PDFPediatr Dermatol
December 2024
Dermatology Department, National Institute of Pediatrics, Mexico City, Mexico.
Health-related quality of life (HRQoL) in pediatric patients with vascular malformations (VaM) remains challenging to measure due to an absence of disease-specific tools and limited correlation with clinical measures. In this cross-sectional study of 50 children with VaM we evaluated self and parental-reported physical and psychosocial HRQoL using the PedsQL tool and analyzed scores according to type of VaM and age categories. We found HRQoL is considerably decreased in children with VaM and perceived similarly by patients and their parents, except for those with simple VaM and ages 13-18 years, who scored physical domains better than their parents.
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