[Perceived quality of life in mothers of young boys with fragile X syndrome].

Prax Kinderpsychol Kinderpsychiatr

Pädagogische Hochschule Heidelberg, Heidelberg.

Published: July 2010

AI Article Synopsis

  • - Quality of life is defined as a personal sense of well-being, notably impacted by parenting stress and resilience, particularly in mothers of children with intellectual disabilities, such as Fragile X syndrome.
  • - A study using the family-related life quality questionnaire (FLQ) involved 26 mothers and showed that parenting stress and coping resources (like hope and family relationships) significantly influence quality of life.
  • - Child-related factors like age and adaptive competence didn't significantly affect mothers' perceived quality of life, but aspects like child temperament and behavior indirectly impacted maternal satisfaction and stress levels.

Article Abstract

Quality of life has been conceptualized as a subjective view of one's feeling of well-being. There is evidence for restraints caused by parenting stress as well as resilience in mothers of children with an intellectual handicap. Specifically, we report on an investigation using the family-related life quality questionnaire (FLQ) in mothers of 26 young boys with Fragile X syndrome. Quality of life is affected by parenting stress as well as individual and social coping resources (hope as a personal trait and quality of family relationships). Child-related variables (age, adaptive competence) had no significant effect on perceived quality of life, child temperament and atypical behavior is related indirectly to maternal life satisfaction as a factor determining the degree of parenting stress.

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Source
http://dx.doi.org/10.13109/prkk.2010.59.5.389DOI Listing

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