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Alzheimers Dement
December 2024
Wisconsin Alzheimer's Disease Research Center, University of Wisconsin School of Medicine and Public Health, Madison, WI, USA.
Background: Ethnic and racial diversity in clinical research is critical for developing generalizable treatments and caregiving strategies. Barriers to participation among persons from underrepresented groups (URG) are systemic in clinical research. To increase URG research participation, we designed a community-based data collection site where study participants complete full research visits.
View Article and Find Full Text PDFDementia Care Research and Psychosocial Factors.
Alzheimers Dement
December 2024
Mayo Clinic, Jacksonville, FL, USA.
Background: Rapidly progressive dementia (RPD) is variably defined across published cohorts. A standardized definition is needed to support multicenter studies required to inform the causes of RPD and optimize recognition and management of treatment-responsive causes. An optimal definition will capture the broad spectrum of causes of RPD, adequately differentiate patients with rapid and typically progressive presentations of neurodegenerative disease, and be reliably implemented across healthcare settings and centers.
View Article and Find Full Text PDFDementia Care Research and Psychosocial Factors.
Alzheimers Dement
December 2024
University of Wisconsin Madison School of Medicine & Public Health, Madison, WI, USA.
Background: People living with dementia (PLWD) are high utilizers of acute illness and emergency care, with over 50% of the more than 6 million people with Alzheimer's disease and Alzheimer's disease related dementia (ADRD) visiting an emergency department (ED) annually. While the ED plays an important role meeting the urgent and acute needs of PLWD and their caregivers, presence of ADRD is often not well recognized and ED visits are associated with significant adverse outcomes for PLWD. Despite these factors, research on the emergency care needs of PLWD is extremely limited.
View Article and Find Full Text PDFDementia Care Practice.
Alzheimers Dement
December 2024
University of Hertfordshire, Hatfield, Hertfordshire, United Kingdom.
There are many types of Dementia-Friendly Communities (DFCs), and communities define and implement them in different ways. Toolkits from the World Health Organisation and Dementia Friendly America have defined specific goals for DFCs, and in 2013, Alzheimer's Society created a national recognition programme for UK DFCs to respond to the diversity of interpretations. Key elements of the programme included People (awareness and training), Process (support and signposting) and Place (physical support and community).
View Article and Find Full Text PDFDementia Care Practice.
Alzheimers Dement
December 2024
Neuroscience Research Australia, Sydney, NSW, Australia.
People living with dementia have a range of functional, physical, cognitive, and behaviour needs. Reablement (and/or 'rehabilitation') is an important multidisciplinary approach, such as using occupational therapy and exercise, to address each person's needs. People with dementia in Australia are being referred to community aged care teams for everyday living support, and an evidence-informed reablement handbook is freely available (www.
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