Spouses often are the primary caregiver for the hematopoietic stem cell transplant (HSCT) recipients and participate in the transplant recipients' care throughout the HSCT trajectory. The purpose of this qualitative study was to explore and describe the experiences of spouses of HSCT recipients during the acute phase of the transplant trajectory. The participants were spousal caregivers (8 wives and 3 husbands) of transplant recipients. Each participant was interviewed 1 to 6 times. Data were analyzed using Spradley's domain analysis. As couples entered the transplant experience, spouses described a sense of dislocation from normal life. They were now riding a rollercoaster in the dark as they lived the uncertainty of this risky therapy. Spouses structured the uncertainty with rituals, formed a positive perspective, and envisioned the future. They described a caregiving role but also needed to balance "me and my world" with "us and our world."
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1097/NCC.0b013e31819962e0 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Exploring experiences of dementia post-diagnosis support and ideas for improving practice: A co-produced study.
Dementia (London)
January 2025
Members of the Forget-Me-Not Research Group, UK.
It takes time to adjust to a diagnosis of dementia. Post-diagnosis support has an important part to play in navigating this transition. However, it is often scarce and variable according to location.
View Article and Find Full Text PDFThe relationship between caregiver burden and life satisfaction in caregivers of individuals with epilepsy: An example in eastern Turkey.
Epilepsy Behav
January 2025
Dursun Odabaş Medical Center, Van Yüzüncü Yıl University, Van, Turkey. Electronic address:
Objective: This study was conducted to investigate the relationship between caregiver burden and life satisfaction among caregivers of individuals with epilepsy.
Methods: This descriptive and cross-sectional study was conducted with 210 caregivers at a university hospital located in Van, a province in eastern Türkiye. A personal information form prepared by the researcher based on literature, along with The Caregiver Burden Scale and Life Satisfaction Scale, was used to collect data.
Negative non-deployment emotions, substance use, and marital satisfaction among never-deployed military couples.
Mil Psychol
January 2025
Department of Community Health and Health Behavior, University at Buffalo, Buffalo, New York, USA.
Among military service members, the experience of never-deploying can create a negative affective state (i.e., "non-deployment emotions"; (NDE)) that increases stress and may contribute to higher rates of substance use among Reserve and National Guard soldiers.
View Article and Find Full Text PDFReceived and Desired Support Needs of Postoperative Bariatric Surgery Patients.
Gastroenterol Nurs
January 2025
About the authors: Katherine K. Sink, PhD, APRN-CNS, is a Retired Professor, University of Toledo, Toledo, Ohio.
Obesity is a worldwide health concern with one highly effective solution being bariatric surgery. The purpose of this descriptive study was to explore the experiences of postoperative bariatric surgery patients related to perceptions of helpful interventions for achieving and maintaining weight loss. Fifteen participants shared their perceived support received and their perceptions of desired support needed after bariatric surgery.
View Article and Find Full Text PDFResearch suggests that the quality of care provided by family members may be influenced by the quality of relationship they have with the person living with dementia. The study investigated this in the context of assisting with daily activities. The quality of the relationship was assessed using the conceptual framework of relationship continuity/discontinuity which focuses on whether the carer experiences their relationship as continuous or discontinuous with the pre-dementia relationship.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!