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Towards Standardizing Ophthalmic Data for Seamless Interoperability in Eye Care.
Stud Health Technol Inform
August 2024
Institute for Medical Informatics and Biometry, Faculty of Medicine Carl Gustav Carus, Technische Universität Dresden, Dresden, Germany.
Introduction: Seamless interoperability of ophthalmic clinical data is beneficial for improving patient care and advancing research through the integration of data from various sources. Such consolidation increases the amount of data available, leading to more robust statistical analyses, and improving the accuracy and reliability of artificial intelligence models. However, the lack of consistent, harmonized data formats and meanings (syntactic and semantic interoperability) poses a significant challenge in sharing ophthalmic data.
View Article and Find Full Text PDFThe Concept of a Versatile Computing Tool Chain for Utilizing the Core Data Set of the Medical Informatics Initiative in the INTERPOLAR Project.
Stud Health Technol Inform
August 2024
Institute for Medical Informatics, Statistics and Epidemiology (IMISE), University of Leipzig, Leipzig, Germany.
Introduction: To support research projects that require medical data from multiple sites is one of the goals of the German Medical Informatics Initiative (MII). The data integration centers (DIC) at university medical centers in Germany provide patient data via FHIR® in compliance with the MII core data set (CDS). Requirements for data protection and other legal bases for processing prefer decentralized processing of the relevant data in the DICs and the subsequent exchange of aggregated results for cross-site evaluation.
View Article and Find Full Text PDFStreamlining intersectoral provision of real-world health data: a service platform for improved clinical research and patient care.
Front Med (Lausanne)
June 2024
Faculty of Medicine Carl Gustav Carus, Institute for Medical Informatics and Biometry, Technische Universität Dresden, Dresden, Germany.
Introduction: Obtaining real-world data from routine clinical care is of growing interest for scientific research and personalized medicine. Despite the abundance of medical data across various facilities - including hospitals, outpatient clinics, and physician practices - the intersectoral exchange of information remains largely hindered due to differences in data structure, content, and adherence to data protection regulations. In response to this challenge, the Medical Informatics Initiative (MII) was launched in Germany, focusing initially on university hospitals to foster the exchange and utilization of real-world data through the development of standardized methods and tools, including the creation of a common core dataset.
View Article and Find Full Text PDF[Data integration centers-from a concept in the Medical Informatics Initiative to its local implementation in the Network of University Medicine].
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz
June 2024
Institut für Medizinische Informatik und Statistik (IMIS), Christian-Albrechts-Universität zu Kiel & Universitätsklinikum Schleswig-Holstein, Kiel, Deutschland.
As part of the Medical Informatics Initiative (MII), data integration centers (DICs) have been established at 38 university and 3 non-university locations in Germany since 2018. At DICs, research and healthcare data are collected. The DICs represent an important pillar in research and healthcare.
View Article and Find Full Text PDFINviting Veterans InTo Enrollment in Alzheimer's Disease Research Centers (INVITE-ADRC): An NIA and VA-sponsored initiative to increase veteran participation in aging and dementia research.
Alzheimers Dement
April 2024
Office of Research and Development, US Department of Veterans Affairs, Washington, District of Columbia, USA.
Introduction: Older military veterans often present with unique and complex risk factors for Alzheimer's disease (AD) and related dementias. Increasing veteran participation in research studies offers one avenue to advance the field and improve health outcomes.
Methods: To this end, the National Institute on Aging (NIA) and Department of Veterans Affairs (VA) partnered to build infrastructure, improve collaboration, and intensify targeted recruitment of veterans.
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