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Cross-Cultural Translation of the Adolescent Menstrual Bleeding Questionnaire (AMBQ).
Haemophilia
December 2024
Division of Hematology/Oncology IWK Health, Department of Pediatrics Dalhousie University, Halifax, Nova Scotia, Canada.
Aim: Heavy menstrual bleeding (HMB) affects up to 37% of adolescents. Given the paucity of available tools to assess health-related quality of life (HRQoL) in adolescents with HMB, we developed the adolescent menstrual bleeding questionnaire (aMBQ), a valid and reliable measure of bleeding-related quality of life. The aim of this study was cross-cultural translation and adaptation of the English aMBQ into French to ensure accessibility for more Canadian adolescents who menstruate.
View Article and Find Full Text PDFMicrobial functional diversity and redundancy: moving forward.
FEMS Microbiol Rev
December 2024
Institute of Marine Sciences (ICM-CSIC), Department of Marine Biology and Oceanography, CSIC, Barcelona, Catalunya, Spain.
Microbial functional ecology is expanding as we can now measure the traits of wild microbes that affect ecosystem functioning. Here, we review techniques and advances that could be the bedrock for a unified framework to study microbial functions. These include our newfound access to environmental microbial genomes, collections of microbial traits, but also our ability to study microbes' distribution and expression.
View Article and Find Full Text PDFCaribbean data-sharing initiatives: activities of the Eastern Caribbean Health Outcomes Research Network.
Rev Panam Salud Publica
December 2024
Equity Research and Innovation Center Yale School of Medicine New Haven United States of America Equity Research and Innovation Center, Yale School of Medicine, New Haven, United States of America.
The dissemination of biomedical research data beyond academia remains limited. In response, funding agencies now regularly require that the projects they fund make research data openly available for reuse. This emerging open data movement aims to democratize data access, often guided by the FAIR data technical standards, requiring that data should be findable, accessible, interoperable and reusable.
View Article and Find Full Text PDFReconciling data actionability and accountability in global health research: The case of SARS-CoV-2.
Glob Public Health
December 2025
Egenis, Centre for the Study of Life Sciences, Exeter University, Exeter, UK.
Article Synopsis
- The balance between actionability and accountability in data infrastructures is often seen as a trade-off, where improving one can hinder the other.
- Through a study of two genomic data-sharing infrastructures for SARS-CoV-2, the authors assert that effective data use requires commitment to representative and accountable data practices.
- Key elements for achieving this include diverse data contributions, inclusive governance mechanisms for contributors, and a focus on how data infrastructures are managed and financed, emphasizing the importance of ongoing communication among contributors.
The use of psychiatric medications and associated factors among people receiving care at a transgender outpatient clinic in Southern Brazil, 2021-2022.
Epidemiol Serv Saude
December 2024
Universidade do Vale do Rio dos Sinos, Faculdade de Medicina, Porto Alegre, RS, Brazil e Aids Healthcare Foundation Brasil, Porto Alegre, RS, Brazil.
Objective: To investigate the prevalence of psychiatric medication use and sociodemographic factors, including gender identity, age, race/skin color, education level, formal employment, and access to Primary Health Care (PHC) centers, among individuals receiving care at a transgender outpatient clinic in Southern Brazil.
Methods: : This was a cross-sectional study using administrative data from the information systems of the Municipal Health Department of Porto Alegre, the capital city of Rio Grande do Sul state, collected between 2021 and 2022.
Results: : This study analyzed 629 records of individuals who accessed the outpatient clinic and found a 29% prevalence (95%CI 25;32) of psychiatric medication use, with the most frequent class being psychoanaleptics (45%), especially fluoxetine (31%).
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