Objectives: The aim of this study was to investigate the effects of group living care for people with dementia on the psychological distress of informal caregivers, compared with regular nursing home care.
Method: This study had a quasi-experimental design with two measurements. 67 primary informal caregivers in 19 group living homes and 99 primary informal caregivers in seven regular nursing homes filled in a questionnaire upon admission (baseline measurement) of their relative and six months later (effect measurement). Linear and logistic regression analyses were performed on three outcomes of psychological distress - psychopathology, caregiving competence and caregiver burden.
Results: There were no significant differences in caregiver competence and caregiver burden between informal caregivers of residents in group living homes and those in regular nursing homes, although there was a trend towards less psychopathology in group living homes after adjustment for confounding.
Conclusion: Informal caregivers of residents in group living homes do not have less psychological distress than informal caregivers of residents in regular nursing homes. Although there was a trend towards less psychopathology in informal caregivers of group living homes, the amount of symptoms remained very high in both caregiver groups. This means that the psychological well-being of caregivers deserves the continuing attention of health care providers, also after admittance of their relative in a nursing home facility.
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http://dx.doi.org/10.1080/13607860802380615 | DOI Listing |
Rev Gaucha Enferm
January 2025
Universidade Federal de São Paulo, Escola Paulista de Enfermagem, São Paulo, São Paulo, Brasil.
Objective: To analyze family dynamics, the support network of family caregivers of individuals with progressive cancer, and their needs for comprehensive care.
Method: Qualitative, descriptive study developed based on the Calgary Family Assessment Model framework. It was conducted from September 2022 to April 2023, through participant observation at a public health institution in São Paulo and interviews with six family caregivers.
Rev Gaucha Enferm
January 2025
Universidade Estadual de Feira de Santana. Departamento de Saúde. Programa de Pós-Graduação em Saúde Coletiva. Feira de Santana, Bahia, Brasil.
Objective: to analyze the implementation of care agreements developed in the CACTO program for mothers of children with Autism Spectrum Disorder.
Method: exploratory, qualitative study, guided by Unitary Caring Science and the Implementation Science methodological framework, based on the Consolidated Conceptual Framework for Implementation Research. Conducted with 20 mothers of children with Autism Spectrum Disorder, between April 2023 and February 2024, during care meetings developed in a non-governmental organization.
J Neurol
January 2025
Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.
Background: The cognitive and behavioural changes that occur in around 50% of people with amyotrophic lateral sclerosis (ALS) may significantly affect people around them, contributing to heightened burden, anxiety, and depression. Despite existing evidence linking behavioural impairment to caregiver distress, the role of cognitive impairment remains less clear, with mixed findings on its impact.
Methods: This study assessed the influence of cognitive and behavioural impairments in people with ALS on the distress of their nominated informants.
J Neurol
January 2025
Parkinson's Disease Research Clinic, Macquarie University, 75 Talavera Road, Sydney, NSW, 2109, Australia.
Impulse Control Disorders (ICDs) are increasingly recognized as a significant non-motor complication in Parkinson's disease (PD), impacting patients and their caregivers. ICDs in PD are primarily associated with dopaminergic treatments, particularly dopamine agonists, though not all patients develop these disorders, indicating a role for genetic and other clinical factors. Studies over the past few years suggest that the mesocorticolimbic reward system, a core neural substrate for impulsivity, is a key contributor to ICDs in PD.
View Article and Find Full Text PDFJ Bone Joint Surg Am
January 2025
Department of Orthopaedic Surgery, Warren Alpert Medical School, Brown University, Providence, Rhode Island.
➢ Advanced care planning most commonly refers to the act of planning and preparing for decisions with regard to end-of-life care and/or serious illness based on a patient's personal values, life goals, and preferences.➢ Over time, advanced care planning and its formalization through advanced directives have demonstrated substantial benefits to patients, their families and caregivers, and the larger health-care system.➢ Despite these benefits, advanced care planning and advanced directives remain underutilized.
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