This critical ethnographic study aimed to understand policy and documentation in relationship to guiding nursing practice in delivering a palliative approach to residents of an aged care unit of a Multi-purpose Service (MPS). A thematic analysis was undertaken that searched the text for cultural determinants of practice, and similarities and differences between the data sets. Where discrepancies occurred, key informants were revisited and questioned regarding anomalies. Using a critical lens this interpreted data formed the substantive findings of this research. The Guidelines for a Palliative Approach in Residential Aged Care (RAC) were not known or understood by management or nurses employed in this MPS. This paper supports the need for research to be conducted into evaluating the Guidelines as the current premise of this research is that policy is rhetoric not reality in providing a planned trajectory of care for residents and their family members.
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http://dx.doi.org/10.5172/conu.673.29.2.174 | DOI Listing |
Ned Tijdschr Geneeskd
January 2025
Integraal Kankercentrum Nederland (IKNL), Utrecht.
Unlabelled: The number of individuals with advanced cancer is increasing, making palliative care more important. However, there is limited knowledge in the Netherlands about the quality of care received by patients in the palliative phase. This is why the Netherlands comprehensive cancer organization (IKNL) started the 'eQuiPe study' to understand the experienced quality of care and quality of life of patients with advanced cancer and their relatives to further improve palliative care.
View Article and Find Full Text PDFNurse Educ
November 2024
Author Affiliations: Palliative Care Catalyst Network (Ms Dahlin), Beverly, Massachusetts, Palliative Care Services (Ms Dahlin), Mass General Brigham-Salem Hospital, Salem, Massachusetts; Meyers College of Nursing (Dr Wholihan), New York University, New York, New York; School of Nursing (Dr Wiencek), Loyola University, New Orleans, Louisiana; College of Nursing (Dr Acker), University of Alabama Capstone, Tuscaloosa, Alabama; College of Nursing (Dr Breakwell), Marquette University, Milwaukee, Wisconsin; School of Nursing (Ms Buschman), Columbia University, New York, New York; College of Nursing (Dr Cormack), Medical University of South Carolina, Charleston, South Carolina; College of Nursing (Dr DeSanto-Madaya), University of Rhode Island, Providence, Rhode Island; School of Nursing (Dr Doherty), University of Pennsylvania, Philadelphia, Pennsylvania; School of Nursing (Dr Edwards), The University of Alabama at Birmingham, Birmingham, Alabama; School of Nursing (Dr English), University of Colorado Anschutz Medical Campus, Aurora, Colorado; School of Medicine and College of Nursing (Dr Fink), University of Colorado Anschutz Medical Campus, Aurora, Colorado; Interprofessional MSPC & Palliative Certificate Programs (Dr Goodnough), University of Colorado Anschutz Medical Campus, Aurora, Colorado; College of Nursing (Dr Lindell), Medical University of South Carolina, Charleston, South Carolina; Francis Payne Bolton School of Nursing (Dr Mazanec), Case Western Reserve University, Cleveland, Ohio; College of Nursing (Dr McHugh), Columbia University Irving Medical Center, New York, New York; School of Nursing (Dr Moore), University of Southern Alabama, Mobile, Alabama; College of Nursing (Dr Obrecht), University of Illinois Chicago, Chicago, Illinois; School of Nursing (Dr Pawlow), University of Pennsylvania, Philadelphia, Pennsylvania; Palliative Care Department (Dr Johnstone-Petty), Providence Alaska Medical Group, Anchorage, Alaska; College of Nursing (Dr Quinlin), The Ohio State University, Columbus, Ohio; and School of Nursing (Dr Tresgallo), Columbia University Irving Medical Center, New York, New York.
Background: Advanced practice registered nurses (APRNs) are essential to care for the growing number of individuals with advanced illness given the shortage of palliative care clinicians.
Problem: Graduate education for specialty practice palliative APRNs lacks consistency in structure, content, and standardization of specialty palliative APRN education.
Approach: A workgroup of expert palliative APRNs and graduate faculty conducted focused discussions and a literature review to develop consensus recommendations based on national palliative APRN competencies and aligned with the 8 core concepts of the AACN Essentials.
BMC Palliat Care
January 2025
Kingston University London, London, United Kingdom.
Background: People with intellectual disabilities are less likely to have access to palliative care, and the evidence shows that their deaths are often unanticipated, unplanned for, and poorly managed. Within the general population, people from minoritised ethnic groups are under-represented within palliative care services. End-of-life care planning with people with intellectual disabilities from minoritised ethnic groups may be a way to address these issues.
View Article and Find Full Text PDFJ Nephrol
January 2025
Department of Medicine, Division of Nephrology, Loma Linda University Medical Center, Loma Linda, CA, USA.
The increasing prevalence of kidney failure highlights the crucial need for effective patient-physician communication to improve health-related quality of life and ensure adherence to treatment plans. This narrative review evaluates communication practices in the context of advanced kidney disease, focusing on the frameworks of shared decision-making, advanced care planning, and communication skills training among nephrologists. The findings highlight the significant gaps in patient-physician communication, particularly in the domains of advanced care planning, shared decision-making, and dialysis withdrawal.
View Article and Find Full Text PDFBMJ Open
December 2024
Regional Rehabilitation Unit, Northwick Park Hospital, London, UK.
Objectives: To adapt and apply a model for evaluating the functional benefits and cost efficiency of specialist inpatient rehabilitation to the Australian context, comparing functional outcomes and savings in the cost of ongoing care after acquired brain injury.
Design: An observational cohort analysis of prospectively collected clinical data from admission to discharge, with follow-up to 3 years.
Setting: A newly established state-wide inpatient postacute rehabilitation unit in Victoria, Australia for patients with moderate to severe acquired brain injury.
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