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Consent and Inclusion of People Living with Dementia (PLWD) in Research: Establishing a Canadian Agenda for Inclusive Rights-Based Practices.
Can J Aging
December 2024
University of British Columbia, Vancouver, BC, Canada (Honorary doctorate).
Background: People living with dementia (PLWD) may want to participate in research, but the guidelines and processes enacted across various contexts may prohibit this from happening.
Objective: Understanding the experiences of people with lived experiences of dementia requires meaningful inclusion in research, as is consistent with rights-based perspectives. Currently, the inclusion of PLWD in Canadian research is complex, and guidelines and conceptual frameworks have not been fully developed.
Unlabelled: Timbre is a central quality of singing, yet remains a complex notion poorly understood in psychoacoustic studies. Previous studies note how no single acoustic variable or combinations of variables consistently predict timbre dimensions. Timbre varies on a continuum from darkest to lightest.
View Article and Find Full Text PDFMinimum intervention oral care - incentivising preventive management of high-needs/high caries-risk patients using phased courses of treatment.
Br Dent J
March 2024
Clinical Policy Lead, Office of the Chief Dental Officer England, UK.
This paper demonstrates how person-focused, prevention-based, risk/needs-related, team-delivered, minimum intervention oral care (MIOC) principles and approaches can be integrated into the dental profession for the delivery of environmentally sustainable, optimal care to high-needs and high caries-risk/susceptibility patients. It highlights the potential for NHS remuneration for prevention-based, phased, personalised care pathways/plans (PCPs) within a reformed NHS dental contract system. It emphasises the importance of comprehensive and longitudinal patient risk/susceptibility assessments, prevention and stabilisation of the oral environment before considering more complex, definitive restorative work.
View Article and Find Full Text PDFPolicy-making and implementation for newborn bloodspot screening in Europe: a comparison between EURORDIS principles and UK practice.
Lancet Reg Health Eur
October 2023
UK National Screening Committee, Department of Health and Social Care, 39 Victoria Street, London SW1H 0EU, UK.
Newborn bloodspot screening (NBS) policy is a contentious area in Europe. Variation in the screening panels on offer, in the approach to evidence assessment and in the use of health economic modelling are some of the issues which are debated on the topic. In this paper we focus on a set of patient-driven principles for newborn screening published by EURORDIS and use these as a reference point for exploration and comparison with NBS policy development and screening practice in the UK.
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