View of Mexican family members on the autonomy of adolescents and adults with intellectual disability.

Salud Publica Mex

Centro de Investigaciones en Salud Poblacional, Instituto Nacional de Salud Pública, Cuernavaca, México.

Published: September 2008

AI Article Synopsis

  • The study explores how Mexican adolescents and adults with intellectual disabilities practice different types of autonomy, involving personal, social, sexual, and economic aspects of their lives.
  • Focus groups with family members of individuals who received independent living training were analyzed to understand their perspectives on autonomy.
  • The research identifies three types of autonomy: empowered (skill-based and independent), negotiated (guided learning), and interpreted (dependent on others for decision-making), highlighting the complexity and overlap between these forms.

Article Abstract

This study aims to describe the ways in which Mexican adolescents and adults with intellectual disability exercise autonomy. Two focus groups were carried out with family members who are the legal guardians of people with intellectual disability who have received independent living training at the Center for Integral Training and Development (CADI, per its abbreviation in Spansh). Focus group transcripts were analyzed with codes defined a priori, based on an existing theoretical framework on autonomy and quality of life among intellectually disabled persons. Autonomy is exercised by the intellectually disabled in the personal, social, sexual and economic spheres of life. Empowered autonomy implies that the person is taught the necessary skills and then allowed to act upon his or her own interests. Negotiated autonomy includes guidance, explanation and negotiation; it constitutes a learning process. Interpreted autonomy is the most limited type described, and implies protection, interpretation and may involve decision-making by others. These types of autonomy constitute a complex phenomenon and the divisions between them are indistinct.

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http://dx.doi.org/10.1590/s0036-36342008000800015DOI Listing

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