Introduction: The purpose of this review was to identify and critique validation studies focusing on the Edmonton Symptom Assessment System (ESAS), a commonly used symptom assessment tool for advanced cancer and palliative patients.
Methods: Using a comprehensive literature search, the authors identified and screened 87 publications. Thirteen articles were selected for in-depth review, based on the following inclusion criteria: psychometric studies with a primary focus on the ESAS, 1991--2006 publication dates and peer-reviewed English language publications.
Results: Most studies involved cancer patients (n = 11). The ESAS format varied across studies, in terms of scale format, item number, item selection and language. Studies focused on gathering reliability estimates (n = 8), content validity evidence (n = 1), concurrent validity evidence (n = 5), predictive validity evidence (n = 1), and sensitivity and/or specificity (n = 3). None of these studies involved patients' perspectives as a source of validity evidence.
Discussion: The use of varying instrument formats and limited psychometric evidence support the need for further ESAS validation studies, including the involvement of patients.
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http://dx.doi.org/10.1177/0269216307087659 | DOI Listing |
Alzheimers Dement
December 2024
455 Broadway St., Redwood City, CA, USA.
Background: A potential mechanism underpinning the cognitive benefits from physical activity and aerobic exercise is cardiorespiratory fitness (CRF). Greater cardiorespiratory fitness (CRF) was associated with better executive function, short-term memory, and global cognition in older adults without cognitive impairment. Sex differences in CRF has been established in adults.
View Article and Find Full Text PDFAlzheimers Dement
December 2024
University College London, London, London, United Kingdom.
Background: People with dementia have complex palliative care needs including psycho-social, physical and spiritual; however, they are often unmet. It is important to empower people with dementia, family caregivers and professionals to work together to better assess and monitor ongoing needs. This study aimed to co-design and test the feasibility of an integrated model of palliative dementia care to support holistic assessment and decision making for care in the community and care homes (assisted living facilities).
View Article and Find Full Text PDFAlzheimers Dement
December 2024
Senior Doc, Orange, CA, USA.
Background: The imminent launch of the Guiding an Improved Dementia Experience (GUIDE) Model necessitates a nuanced understanding of family caregiver needs to support the implementation of family-centered dementia care plans. Recognizing the multifaceted role of family caregivers, a preliminary working session was convened to outline the foundational elements of a family caregiver assessment, ensuring these assessments are equipped to guide effective interventions.
Method: A multidisciplinary panel consisting of a clinical psychologist, two health care executives, and a physician with geriatric expertise convened to delineate components of a caregiver assessment tool to supplement the Zarit Burden Interview.
Alzheimers Dement
December 2024
Tel Aviv Sourasky Medical Center, Tel Aviv, Israel.
Introduction: Lecanemab (LEQEMBI®), a humanized monoclonal antibody targeting Amyloid-beta (Aβ) protofibrils, received full FDA approval in July 2023 for treating early-stage Alzheimer's disease (AD). This abstract highlights Tel Aviv Medical Center's (TLVMC) specialized infrastructure for early AD diagnosis and treatment and includes presenting baseline characteristics of initial patients opting for LEQEMBI®.
Methods: Outlining our clinics' operational experience in establishing the Center for advanced treatments for AD, treatment protocol, and a descriptive analysis of baseline assessment data including demographics, baseline Magnetic-Resonance-Imaging (MRI), Cerebrospinal-fluid (CSF)/PET biomarkers, pre-treatment cognitive evaluations (Mini-Mental-State-Examination (MMSE)/Montreal-Cognitive-Assessment (MoCA)), and Apolipoprotein-E (APOE) status.
Alzheimers Dement
December 2024
Mayo Clinic, Rochester, MN, USA.
Background: Self-administered cognitive assessments demonstrate usability and ability to detect cognitive decline in Alzheimer's disease, but usability in other neurodegenerative diseases is understudied. We investigated whether Mayo Test Drive (MTD), a self-administered multi-device compatible cognitive assessment platform, demonstrates usability and correlation with traditional neuropsychological tests in a pilot study of individuals with progressive supranuclear palsy (PSP).
Method: Eleven individuals with PSP (mean age = 69.
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