Purpose/objectives: To test a model of family caregiving derived from the interactionist approach to role theory that hypothesized that three caregiving role implementation variables (caregiving demand, mutuality between caregivers and patients, and preparedness for caregiving) would predict multiple caregiving-specific and generic outcomes with different patterns of association across outcomes.
Design: Descriptive, correlational.
Setting: Surgical, radiation, and medical oncology settings.
Sample: 87 family caregivers of adults receiving treatment for solid tumors or lymphoma.
Methods: Caregivers completed the Demand and Difficulty subscales of the Caregiving Burden Scale; the Mutuality, Preparedness, and Global Strain scales of the Family Care Inventory; and the 30-item short form of the Profile of Mood States. Data were analyzed with simultaneous multiple regression.
Main Research Variables: Caregiving demand, mutuality, preparedness, caregiving difficulty, global caregiver strain, tension, depression, anger, fatigue, vigor, confusion, and total mood disturbance.
Findings: The model explained statistically significant proportions of variance in each outcome, with different patterns of association across outcomes. Demand was associated most strongly with caregiving difficulty and global strain. Mutuality was associated most strongly with caregiver anger. Unexpectedly, preparedness was associated more strongly with mood disturbance outcomes than with the caregiving-specific variables of difficulty and strain.
Conclusions: Further research should explore models that address implementation of the caregiving role to better elucidate how family caregivers learn and carry out the important role.
Implications For Nursing: Clinical assessment should include caregiving demand, the quality of the relationship between caregiver and patient, and preparedness for caregiving. Interventions could be tailored to meet caregiver needs in each area.
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http://dx.doi.org/10.1188/08.ONF.49-56 | DOI Listing |
Orphanet J Rare Dis
December 2024
Department of Medical Genetics, Telemark Hospital Trust, Skien, Norway.
Background: Epidermolysis bullosa (EB) comprises a group of genetically and clinically heterogeneous diseases characterized by skin fragility and blistering. EB is incurable, and treatment consists of preventing blisters in addition to painful and time consuming skin care, often performed by the parents, in addition to monitoring other symptoms in cases of severe EB.
Results: The purpose of this study was to explore parental experiences of caring for a child with EB.
J Gerontol B Psychol Sci Soc Sci
December 2024
Department of Global Health & Social Medicine, King's College London, London UK.
Objectives: This study examines employment responses to a partner's disability onset and how this is moderated by working conditions: job satisfaction and psychosocial job demands.
Methods: We use longitudinal nationally representative data from the English Longitudinal Study of Aging. Following the health shock literature, we identify individuals whose partners report the onset of difficulties in activities of daily living (ADL) or instrumental activities of daily living (IADL) between two waves (n=1,020) as experiencing a 'care shock'.
BMC Res Notes
December 2024
The University of Tokyo, 7-3-1 Hongo, Bunkyo-ku, Tokyo, 113-0033, Japan.
Objective: This study aimed to examine the characteristics of participation in the self-quantification program for family caregivers (CGs) who provide long-term care to community-dwelling older adults. The family CGs, allocated based on the percentage of the nation's older population who needed care and met the inclusion criteria, who provided caregiving at least once a week for those aged 65 + and who were certified as needing care under the Japanese long-term care insurance program, were collected through online monitors. We compared the characteristics of the program participants and nonparticipants using logistic regression.
View Article and Find Full Text PDFBMJ Open
December 2024
Departament d'Infermeria, Universitat Rovira i Virgili, Tarragona, Spain.
Objective: The purpose of this study was to explore experiences of family and professional caregivers of persons with dementia in order to design a tailored community-based support programme.
Design: A two-stage study was deployed. First, qualitative research draws on three focus groups.
BMC Health Serv Res
December 2024
Department of Medical Statistics & Epidemiology, School of Public Health, Sun Yat-sen University, No. 74, Zhongshan 2 Road, Guangzhou, China.
Background And Objectives: There is a growing demand for dementia care to be funded by long-term care insurance (LTCI). However, evidence indicates that people with dementia are overlooked in China's LTCI policy and empirical research on this issue is notably scarce. Among the first seven LTCI pilot cities that officially enrolled people with dementia, Guangzhou is unique for roll-back LTCI policies related to eligibility criteria and benefits.
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