This is the first in a series of two consecutive articles, both of which present the results of original research from a team of music-thanatology musician-clinicians working in Spokane, Washington. This article presents not only an overview of the music-thanatology narration style (through direct excerpts from clinical narratives), it also describes the interconnected physical, emotional, and spiritual needs of 11 dying persons and their families as they occur in a hospital setting. Core to narrative medicine practice, in the first article, we welcome these excerpts from patient, provider, and caregiver experiences to stand on their own, in their own voice, without interpretation. The second article will be published in the following issue and will focus on the clinical practice of music-thanatology, as well as the documentation of the palliation it offers to meet the complex physical, emotional, and spiritual needs described below.
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http://dx.doi.org/10.1016/j.explore.2007.09.006 | DOI Listing |
PLOS Glob Public Health
January 2025
African Population and Health Research Center, Nairobi, Kenya.
Intimate partner violence (IPV) is a global issue with several social and health consequences. Global estimates indicate that one-third of women have experienced lifetime IPV. In 2013, sub-Saharan Africa recorded the highest rates of IPV.
View Article and Find Full Text PDFJ Relig Health
January 2025
Department of Sociology, Addis Ababa University, Addis Ababa, Ethiopia.
This article details the religious experiences of family caregivers in living with and caring for people with chronic illnesses in Addis Ababa, Ethiopia. This phenomenological study conducted in-depth interviews with 20 family caregivers recruited from Tikur Anbessa Specialized Hospital, who accompanied their loved ones during medical appointments or hospital stays. It used a thematic analysis to analyze the collected data.
View Article and Find Full Text PDFCalcif Tissue Int
January 2025
Rheumatology department, Hôpital E. Herriot, Lyon, France.
This study explores FD/MAS patient's perceptions about their disease and its impact on their quality of life. We have evaluated quality of life (QoL) in French Fibrous Dysplasia/MacCune-Albright Syndrome (FD/MAS) patients using a qualitative approach with focus groups to explore perceptions, symptoms and limitations associated with FD/MAS and a quantitative method with the Short Form-36 (SF36) to quantify QoL. Focus groups revealed the heterogeneity of FD forms and allowed for understanding the reasons of reduced QoL.
View Article and Find Full Text PDFCalcif Tissue Int
January 2025
MRC Lifecourse Epidemiology Centre, University of Southampton, Southampton General Hospital, Southampton, UK.
Previous studies suggest social support is associated with musculoskeletal health in later life. We explored this relationship further in community-dwelling older adults, by considering associations between different aspects of social support and musculoskeletal health in community-dwelling adults. Participants from the Hertfordshire Cohort Study reported level of confiding/emotional, practical, and negative support using the Close Persons Questionnaire.
View Article and Find Full Text PDFPediatr Surg Int
January 2025
Erciyes University, Kayseri, Türkiye.
Aim: This randomized controlled study aimed to evaluate the effect of hand massage on pain, emotional symptoms, and physiological parameters in children after abdominal surgery.
Materials And Methods: The study included 40 children aged 7-12 years who underwent abdominal surgery (20 intervention, 20 control). Data were collected using the Faces Pain Scale-Revised, Children's Emotion Manifestation Scale, Physiological Measurements Chart, and Child Information Form.
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