Despite both longstanding and recent interest in patient-centered care, there are few published models or methods for defining and implementing patient-centered care in the office and hospital setting through a full cycle of care from the patient's perspective. We describe patient- and family-centered collaborative care as a low-technology, systems-based solution to many current problems and suggest ways to provide safe, effective, timely, and efficient health care. We presumed such a patient- and family-centered collaborative care model would provide high quality health care. We prospectively collected data on 618 consecutive patients undergoing THA or TKA within a dedicated patient- and family-centered collaborative care program. We found a high level of patient satisfaction with an overall satisfaction score of 91.4 using the Press Ganey Survey. Infection and mortality rates were 0.3% and 0.1%, respectively. Average length of stay was 2.8 days for TKA and 2.7 days for THA with 91% of all patients being discharged directly home and 93% walking without handheld assistance at the time of discharge. The patient- and family-centered collaborative care model is not just another clinical pathway but a comprehensive systems-based approach that focuses on the full cycle of care while placing patients and their families as the top priority to provide high quality health care.
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Matern Child Health J
January 2025
Institute for Advancement of Community Health, Furman University, Greenville, SC, USA.
Objectives: To evaluate the implementation and sustainability of the effect of a 1-year Leadership in Education for Neurodevelopmental and related Disabilities (LEND) program in a southeastern state, and to examine its impact on advancing the Maternal Child Health Bureau's (MCHB) Blueprint for Change-a national agenda for pediatric healthcare reform.
Methods: This study applies the Exploration, Preparation, Implementation, and Sustainment (EPIS) framework to rigorously evaluate LEND implementation and impact between 2018 and 2022. In-depth interviews (N = 24) were conducted among long-term (1-year) LEND trainees, via Zoom, in a southeastern state.
Front Pediatr
January 2025
Division of Nursing Science, Graduate School of Biomedical & Health Sciences, Hiroshima University, Hiroshima, Japan.
Purpose: The Japan Association of Neonatal Nursing evaluated the pain care provided by parents to their infants admitted to the neonatal intensive care unit (NICU). However, further collaborations with families based on family-centered care are necessary to clarify the parental intentions and requests regarding pain care for their infants. This study aimed to describe the experiences and content of nonpharmacological pain care provided by parents to their infants, the intentions and requests of parents regarding each type of recommended pain care (irrespective of whether they had provided pain care at the NICU), and the reasons for their hesitation to implement specific pain management methods.
View Article and Find Full Text PDFJMIR Res Protoc
January 2025
Institute of Medical Sociology and Rehabilitation Science, Charité - Universitätsmedizin Berlin corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
Background: Acquired neurological diseases entail significant changes and influence the relationship between a patient and their significant other. In the context of long-term rehabilitation, those affected collaborate with health care professionals who are expected to have a positive impact on the lives of the affected individuals.
Objective: This study aims to examine the changes in the relationship between the patient and their loved ones due to acquired neurological disorders and the influence of health care professionals on this relationship.
Behav Anal Pract
December 2024
University of Washington, Seattle, WA USA.
Collaboration practices have been utilized within applied behavior analysis (ABA) to build relationships among relevant stakeholders. A recent focus within the field of ABA highlights collaborative practices for behavior analysts to utilize in service delivery positions. However, myriad barriers, such as sources of funding and competing stakeholder interests, inhibit behavior analysts' ability to build collaborative partnerships with families.
View Article and Find Full Text PDFNurs Ethics
January 2025
West China Hospital, Sichuan University.
Truth-telling for terminally ill patients is a challenging ethical and social issue for Chinese health care professionals. However, despite the existence of ethical and moral standards for nurses, they frequently encounter moral dilemmas when making decisions about truth-telling to patients with end-stage diseases in China. This article aims to provide ethical strategies for clinical nurses in China regarding truth-telling decisions for terminally ill patients on the basis of their individual autonomy.
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