AI Article Synopsis
- The success of genetic research relies heavily on patients' willingness to participate, making it crucial to understand their attitudes towards involvement.
- This study examined the experiences of individuals with inherited retinal degenerative disorders who participated in genetic research in Cape Town, revealing that despite differing personal experiences, all four participants had a positive outlook on their involvement.
- The findings highlight the value of qualitative research methods in exploring the perceptions of patients within the ophthalmic field.
Article Abstract
The success of genetic research studies depend on patients' willingness to participate. It is thus important to explore the attitudes of individuals that participate in such studies. This study used qualitative methods to explore how individuals with inherited retinal degenerative disorders (RDD) perceived participating in genetic research and subsequently receiving mutation results. Individual interviews were conducted with all the individuals in the Cape Town Metropolitan area who had received mutation results after participating in a genetic research program (4 individuals). Although experiences differed significantly, the study revealed that the participants had positive attitudes towards participating in the RDD research program. This study illustrates the importance of using qualitative methods in ophthalmic populations to explore important issues.
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| http://dx.doi.org/10.1080/13816810701356627 | DOI Listing |
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