Objective: To describe: a) a self-report questionnaire of 34 item, developed by a Family Association of Psychiatric Patients in collaboration with two psychiatrists to evaluate by key-relative in a clinical practice the perceived quality of mental health services, the needs and family burden; b) the methodology of validation.
Methods: It has been studied (a) the Face Validity by two focus groups of 10 relatives for each group, (b) the concurrent validity of family burden items comparing the ABC with QPF, a widely used questionnaire, in 6 Italian mental health centres on a sample of key-relatives, (c) the discriminant validity comparing three different samples of key-relatives of patients with psychiatric illness, Alzheimer or cancer. The internal consistency of items for assessing relatives' opinions on the quality of care has been evaluated by Chronbach' s alpha. The test-retest has been evaluated on a sample of 20 key-relatives.
Results: The results indicate a fairly good performance of the questionnaire in this preliminary but almost complete phase of validation. The time to fill in it has been estimated in a 7 minutes average.
Conclusion: It is possible by this self-report questionnaire to evaluate in a clinical routine setting and in a very short time three important problems for relatives and professionals: opinions and needs of relatives, and objective and subjective family burden of severe mental illness.
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http://dx.doi.org/10.1186/1745-0179-3-15 | DOI Listing |
Cien Saude Colet
January 2025
Departamento de Saúde Coletiva, Laboratório de Saúde Ambiente e Trabalho do Instituto Aggeu Magalhães (Fiocruz/IAM). Av. Professor Moraes Rego s/n, Cidade Universitária. 50740-465 Recife PE Brasil.
The study analyzed the socio-environmental determination of health in five sugarcane-producing municipalities in Pernambuco. This participatory, qualitative research was conducted from January to August 2022. Workshops were held in the participating communities to build the Participatory Rural Diagnosis of protective and destructive processes of global, community, and individual socio-environmental health dimensions.
View Article and Find Full Text PDFEpidemiol Serv Saude
January 2025
Universidade de Brasília, Faculdade de Ceilândia, Brasília, DF, Brasil.
Objective: To investigate the evolution of prevalence of catastrophic health expenditure in the Brazilian Federal District at three different times (2003, 2009 and 2018), as well, to identify the composition of outof- pocket expenditure in the respective years.
Method: Time series study, using descriptive data from the Family Budget Survey. Prevalence was stratified by consumption quintiles.
J Gerontol B Psychol Sci Soc Sci
January 2025
School of Public Health, Yale University, New Haven, CT, USA.
Objectives: Scholars have increasingly recognized the crucial role that empathy plays as informal caregivers provide unpaid care to their older family and friends (i.e., care recipients).
View Article and Find Full Text PDFDiscov Oncol
January 2025
School of Medicine, Anhui University of Science & Technology, Huainan, China.
Background: Lung adenocarcinoma is one of the most common malignant tumors worldwide. Its complex molecular mechanisms and high tumor heterogeneity pose significant challenges for clinical treatment. The manganese ion metabolism family plays a crucial role in various biological processes, and the abnormal expression of the NUDT3 gene in multiple cancers has drawn considerable attention.
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