The psychosocial impact of 'late' deafness in adults has received little research attention. The aim of this study was to examine the views of people with experience of late deafness living in the UK. Eight participants (six male; age range 33 to 60) were interviewed by a researcher who had undergone appropriate communication skills training. In-depth, face-to-face, semi-structured interviews were conducted and transcribed. Data were analysed using framework analysis to identify themes. Becoming deafened was a devastating experience for many participants who experienced severe psychological, social, and employment consequences. They no longer felt they belonged in the hearing world, and neither did they belong in the prelingually deaf world. Onset of deafness had left them in a twilight zone between worlds and had robbed them of their identity. Whilst the support received from health and social care professionals was mixed, all participants valued the peer support and training received on an intensive rehabilitation programme delivered by deafened people. Findings provide insight into deafened peoples' psychosocial experiences and emphasize the need for support and advice.
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http://dx.doi.org/10.1080/14992020701355108 | DOI Listing |
Endocrinol Diabetes Metab Case Rep
October 2024
Summary: HDR is a rare autosomal dominant genetic disorder characterized by the triad of hypoparathyroidism, sensorineural deafness and renal anomalies caused by haploinsufficiency loss of function of the GATA-binding protein 3 (GATA3) gene. We present a case of a 56-year-old male diagnosed with hypoparathyroidism, sensorineural deafness, renal hypoplasia and epilepsy. Genetic testing revealed a novel GATA3 heterozygous mutation c.
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December 2024
Klinik und Poliklinik für Hals-Nasen-Ohrenheilkunde, Sektion Implant Centrum Freiburg (ICF), Universitätsklinikum Freiburg, Medizinische Fakultät, Albert-Ludwigs-Universität Freiburg, Elsässerstraße 2n, 79110, Freiburg, Deutschland.
Background: Age-appropriate speech development is a primary aim of the rehabilitation of children treated with cochlear implants (CI). Various assessment tools are available, including the speech development test for 2‑year-olds (SETK-2). All tests are normalized to normal-hearing children; additionally, results are evaluated according to age and the duration of CI (hearing age).
View Article and Find Full Text PDFTrends Hear
November 2024
Australian Institute of Health Innovation, Macquarie University, Sydney, NSW, Australia.
This systematic literature review explored the relationship between hearing loss, the use of hearing aids or cochlear implants, and late-deafened adults' perception and appreciation of, and participation in, music. To identify articles, four databases were searched, MEDLINE, Scopus, Embase, and American Psychological Association (APA) PsycINFO, using terms associated with hearing loss, hearing aids, cochlear implants, music perception, appreciation, or participation. The included studies were empirical, written in English, peer reviewed, used any research method, had no date restrictions, and involved late-deafened adults.
View Article and Find Full Text PDFRes Sq
October 2024
Laboratory of Cell Structure and Dynamics, National Institute on Deafness and Other Communication Disorders, National Institutes of Health, Bethesda, MD 20892, USA.
The complex, pleiomorphic membrane structure of the vesicular components within the endolysosomal system has been appreciated through decades of classical electron microscopy. However, due to the heavy fixation and staining required in these approaches, in situ visualization of fragile intermediates between early endosomes, late endosomes and ultimately multivesicular bodies (MVBs), remains elusive, raising the likelihood that other structures may have also been overlooked. Here, using in situ cryo-electron tomography in four mammalian cell lines, we discover heterotypic hemifused vesicles that share an extended hemifusion diaphragm, associated with a 42nm proteolipid nanodroplet (PND).
View Article and Find Full Text PDFmedRxiv
October 2024
UMC Utrecht Brain Center, Department of Neurology and Neurosurgery, University Medical Center, Utrecht, the Netherlands.
Background And Objectives: Brain-computer interfaces () hold promise as augmentative and alternative communication technology for people with severe motor and speech impairment (locked-in syndrome) due to neural disease or injury. Although such BCIs should be available 24/7, to enable communication at all times, feasibility of nocturnal BCI use has not been investigated. Here, we addressed this question using data from an individual with amyotrophic lateral sclerosis (ALS) who was implanted with an electrocorticography-based BCI that enabled the generation of click-commands for spelling words and call-caregiver signals.
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