With the increasing recognition of pediatric sleep disorders, there is a growing demand for pediatric sleep medicine services, including polysomnography. The procedure of polysomnography can be particularly challenging in young children with limited ability to cooperate, especially when they have developmental disabilities or other medical complications. This article describes a family-centered care approach to polysomnography in children that is appropriate in any type of sleep laboratory setting. This approach emphasizes respect for the family, psychological preparation, adaptation of laboratory routines to the needs of the family, substitution of child-friendly terminology for medical jargon, coping strategies for the child and family during the procedure, positioning for comfort, utilization of distraction and medical play, modeling behavior for the parent, and continuous praise and reassurance for the child. In our experience with over 1000 studies in children of all ages with a broad range of comorbidities, implementation of this approach has minimized the burden of the polysomnography for the child, boosted the confidence of the sleep technologist, improved study quality for the diagnostician, and increased patient and family satisfaction.
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Rev Bras Enferm
January 2025
Universidade Federal de Mato Grosso do Sul. Campo Grande, Mato Grosso do Sul, Brazil.
Objective: To map studies on clinical simulation training directed at first responders during pediatric emergencies, focusing on interaction with families.
Methods: A scoping review based on the guidelines of the JBI Manual for Evidence Syntheses and reported according to the PRISMA-ScR checklist, covering eight databases and gray literature, without time or language restrictions.
Results: The ten selected studies indicated that most publications were from the United States.
Hosp Pediatr
January 2025
Department of Pediatrics, New York-Presbyterian Morgan Stanley Children's Hospital/Columbia University Irving Medical Center, New York, New York.
Noah, an 18-month-old infant with trisomy 21, was brought to the emergency department for adenovirus bronchiolitis. He was found to meet criteria for severe malnutrition, and his medical team called Child Protective Services (CPS) with concern for neglect. He remained hospitalized for 1 month while a safe discharge was coordinated by the medical and CPS teams.
View Article and Find Full Text PDFNed Tijdschr Geneeskd
January 2025
Integraal Kankercentrum Nederland (IKNL), Utrecht.
Unlabelled: The number of individuals with advanced cancer is increasing, making palliative care more important. However, there is limited knowledge in the Netherlands about the quality of care received by patients in the palliative phase. This is why the Netherlands comprehensive cancer organization (IKNL) started the 'eQuiPe study' to understand the experienced quality of care and quality of life of patients with advanced cancer and their relatives to further improve palliative care.
View Article and Find Full Text PDFPEC Innov
June 2025
Faculty of Nursing, University of Calgary, PF3280C, 2500 University Drive, NW Calgary, AB T2N 1N4, Canada.
Objective: To compare direct, non-medical out-of-pocket expenditures (OOPE) between mothers receiving Alberta Family Integrated Care (FICare™) versus standard care (SC) during their infant's neonatal intensive care unit (NICU) admission and explore factors influencing spending extremes.
Methods: In this exploratory, concurrent mixed-methods sub-study, we compared mother-reported OOPE from Alberta FICare™ and SC parent journals. We thematically analyzed hand-written notes from 30 journals with the highest and lowest 5 % of OOPE.
Pediatr Res
January 2025
Division of Neurology, Department of Pediatrics, Duke University School of Medicine, Durham, NC, USA.
Clinicians may face an array of challenges in conducting fetal neurological consultations including prognostic uncertainty, a lack of training in fetal counseling, and limited opportunity to build rapport with families. In this setting, it is critical to employ high-quality, family-centered care to allow expectant parents to make informed decisions. Despite the challenges and gravity of these consultations, there remains limited data outlining best conduct and communication practices.
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