AI Article Synopsis
- The study aimed to explore how living with inflammatory bowel disease (IBD) affects the quality of life for children and adolescents aged 7 to 19.
- Eighty participants shared their experiences, revealing that IBD significantly impacts their daily lives, leading to feelings of vulnerability and being "different" from peers.
- Despite these challenges, many found coping strategies, with family and friend support playing a crucial role in maintaining a positive outlook and quality of life.
Article Abstract
Background: The aims of this study were to understand the lived experience and elements of quality of life as depicted by children and adolescents with inflammatory bowel disease (IBD).
Methods: Eighty participants with IBD, ranging in age from 7 to 19 years, were interviewed about the impact of IBD on their daily lives.
Results: Findings demonstrated that IBD profoundly affects children and adolescents. These young patients experience concerns and discomfort as a result of IBD symptoms and treatments. They commonly feel, in varying degrees, a sense of vulnerability and diminished control over their lives and future, and perceive themselves as "different" from healthy peers and siblings. Despite these negative impacts, participants also described effective means of coping with IBD, and reported that support from family members and friends contributes to coping. A positive attitude and other strategies were also described as strengths contributing to quality of life.
Conclusion: Clinical assessments need to consider the experiences and perceptions of children as they manage their IBD. Implications for clinical practice are discussed.
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| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1892542 | PMC |
| http://dx.doi.org/10.1186/1477-7525-5-28 | DOI Listing |
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