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Paediatric Personalized Research Network Switzerland (SwissPedHealth): a joint paediatric national data stream.
BMJ Open
December 2024
Institute of Social and Preventive Medicine (ISPM), University of Bern, Bern, Switzerland.
Introduction: Children represent a large and vulnerable patient group. However, the evidence base for most paediatric diagnostic and therapeutic procedures remains limited or is often inferred from adults. There is an urgency to improve paediatric healthcare provision based on real-world evidence generation.
View Article and Find Full Text PDFEthical considerations for respectful research participant payment processes.
J Clin Transl Sci
November 2024
Department of Bioethics and Decision Sciences, Geisinger College of Health Sciences, Danville, PA, USA.
Background: Researchers and research organizations acknowledge the importance of paying research participants but often overlook the process of providing participant payments as a locus for improving equity and inclusion in clinical research. In this conceptual paper, we argue that participants' lived experiences and social context should be recognized and respected when developing these processes.
Methods: We consider how participant payment processes that require specific payment types, delay the timing of payment, or require sharing sensitive information may impose barriers to equitable research.
Ethical attitudes and perspectives of AI use in medicine between Croatian and Slovenian faculty members of school of medicine: Cross-sectional study.
PLoS One
December 2024
Faculty of Criminal Justice and Security, University of Maribor, Ljubljana, Slovenia.
Background: Artificial intelligence (AI) is present in preclinical, clinical and research work, in various branches of medicine. Researchers and teachers at school of medicines may have different ethical attitudes and perspectives about the implementation of AI systems in medicine.
Methods: We conducted an online survey among researchers and teachers (RTs) at the departments and institutes of two Slovenian and four Croatian Schools of Medicine.
Extracorporeal Life Support: Making Ethically Sound Allocation Decisions for a Limited Resource.
Pediatr Crit Care Med
December 2024
Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute, Seattle, WA.
Cracking the code of the slow code: A taxonomy of slow code practices and their clinical and ethical implications.
Bioethics
November 2024
University of Michigan Medical School, Ann Arbor, Michigan, USA.
The ethical permissibility of the "slow code" sparks vigorous debate. However, definitions of the "slow code" that exist in the literature often leave room for interpretation. Thus, those assessing the ethical permissibility of the slow code may not be operating with shared definitions, and definitions may not align with clinicians' understanding and use of the term in clinical practice.
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