Ethical research with participants who are deaf.

Bull Med Ethics

Faculty of Continuing Education, Birkbeck College, University of London, 26 Russell Square, London WC1B 5DQ, UK.

Published: April 2005

AI Article Synopsis

  • Researching deaf participants involves challenges around language, past experiences, and cultural factors, which can impact communication.
  • Ethical concerns include risks to informed consent and confidentiality, as well as potential biases affecting the validity of the research data.
  • The paper examines issues from four studies with deaf participants and evaluates the effectiveness of the measures implemented to address these challenges.

Article Abstract

When conducting research with participants who are deaf there is a range of potential issues to be considered: issues relating to language and communication, participants' past experience and culture, and the potential power imbalance between researcher and participant. From an ethical perspective these may compromise informed consent and confidentiality, may inadvertently result in deception and may interfere with the validity of the data. The consequences may be negative for both the deaf population and the research community. This paper highlights the issues that arose in four studies with participants who were deaf and discusses the extent to which the measures taken were effective.

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