Aims And Objectives: To understand the unpaid carers' experiences of looking after someone aged over 75 at all stages of their caring career.
Background: The role of, and support for, unpaid carers have become central in the debates surrounding community care in the UK. This paper presents the findings of a study to elicit the complexities of the caring role and inform the Primary Health Care Team to help support carers more effectively.
Designs And Methods: A quantitative research design was employed. Carers of people over 75 years of age in a General Practice, who had been previously identified from a screening questionnaire, were sent the Carers Assessment of Difficulties Index, the Carers Assessment of Satisfactions Index and Carers Assessment of Managing Index questionnaires which examine the experience of caring.
Results: From a sample of 247 carers, a 70% response rate (n = 172) was achieved. Satisfactions lay in the quality of care provided; difficulties reflected the potential and actual family tensions generated; coping strategies included reframing difficulties, using humour and practical problem solving. The data show that caregivers' reactions, such as feeling angry about the situation, or the consequences of their involvement, such as tensions within the family, cause them more difficulties than the actual care-giving tasks they perform.
Conclusion: This study adds to the understanding of carers' roles by including carers across a range of situations, including those at an early stage of their caring career. Service providers are better able to support carers if they understand the complex interplay of difficulties, rewards and personal coping strategies associated with the caring role.
Relevance To Practice: The study helps illuminate the less obvious, but important, emotional aspects of carers' difficulties and suggests strategies which service providers may find helpful in assessing carers' needs and determining the appropriate interventions.
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http://dx.doi.org/10.1111/j.1365-2702.2005.01463.x | DOI Listing |
J Elder Abuse Negl
January 2025
Leonard Davis School of Gerontology, University of Southern California, Los Angeles, CA, USA.
Elder mistreatment occurs in as many as one-half of the 11 million family care partnerships with persons living with Alzheimer's disease or related dementias (AD/ADRD) in the United States. is an 8-week psychoeducational intervention to prevent psychological mistreatment among family caregivers to persons living with dementia by building healthy caregiving relationships. The investigators conducted a single-arm pre- and posttest study to assess 's feasibility.
View Article and Find Full Text PDFAlzheimer Dis Assoc Disord
January 2025
Teikoku Seiyaku, Higashikagawa, Japan.
Background: We previously reported that social restrictions due to the COVID-19 pandemic led to a decline in cognitive function in patients with Alzheimer disease (AD). Here, we assessed the effects of COVID-19 restrictions on the activities of daily living (ADL) and disease severity in patients by comparing them to a control group.
Methods: We examined the impact on ADL, evaluated using disability assessment for dementia (DAD), and disease severity, evaluated using the ABC dementia scale, in patients with mild-to-moderate AD.
Front Public Health
January 2025
Department of Paediatrics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore.
Introduction: The incidence of pediatric tracheostomy is on the rise. More children are undergoing tracheostomy at a younger age and living longer and cared for at home. Caring for children with tracheostomy affects the caregivers' Quality of Life (QOL) and caregiver burden.
View Article and Find Full Text PDFMediterr J Rheumatol
December 2024
PanHellenic Federation of Patients, Parents, Caregivers and Friends of Children with Rheumatic Diseases (RHEUMAZIN), Athens, Greece.
Objective: To assess patients' understanding and attitudes towards biosimilars in rheumatoid diseases in Greece.
Methods: A convenience sample of patients with rheumatoid diseases who were members of the largest rheumatoid patient association (RHEUMAZIN) in Greece was selected for this survey. Data on patients' knowledge and attitudes towards biosimilars were collected with a web-based questionnaire.
Pan Afr Med J
January 2025
Department of Nutrition, Dietetics and Food Sciences, University of Zimbabwe, P.O Box MP 167, Mt Pleasant, Harare, Zimbabwe.
family-led mid-upper arm circumference (FL-MUAC) is a community-based acute malnutrition screening approach that is centered on training the mother or caregiver to use colour-coded MUAC tapes to screen children for malnutrition. A scoping review was conducted to summarise available evidence and evaluate the use of the FL-MUAC approach in the screening for acute malnutrition in Africa. A systematic literature search was performed using electronic databases to identify relevant research documents investigating the FL-MUAC approach.
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