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J Patient Exp
January 2025
Physician Division, Emory Healthcare, Atlanta, GA, USA.
A large clinical practice group sought to create a unique Patient and Family Advisory Council (PFAC) recruitment and engagement model to support shifts in advisor expectations and support a medical group spread out across a large geographic area by providing rapid, custom patient and family feedback for quality, safety, and experience improvement. Patients are actively recruited through an online, automated application process linked to our patient surveys. Within 6 months of automated recruitment, the PFAC grew to over 200 members representing all clinical specialties and a variety of patient demographics, skills, and experiences.
View Article and Find Full Text PDFBr J Anaesth
December 2024
School of Medicine, Dentistry and Biomedical Sciences, Queen's University Belfast, Belfast, UK.
Eur J Paediatr Neurol
November 2024
UCL Great Ormond Street Institute of Child Health, London, UK; Great Ormond Street Hospital for Children, London, UK.
We aimed to develop a registry ('Keto-Reg') for individuals with epilepsy referred for ketogenic dietary therapy (KDT) and to test feasibility of its implementation. The purpose of the registry is to provide a platform for collaborative research to answer specific research questions regarding long-term clinical and safety outcomes and to identify the most suitable candidates for KDT. Registry data items were determined via an international Delphi survey of KDT healthcare professionals, and then entered into an electronic platform.
View Article and Find Full Text PDFHealth Expect
December 2024
Mississauga Health Ontario Health Team, Mississauga, Ontario, Canada.
Introduction: Despite widespread calls to involve patients, families and caregivers (PFCs) as partners at all levels of health system planning and design, there is unevenness in how engagement efforts are supported across these settings. The concept of 'engagement-capable environments' offers a way forward to uncover the key requirements for sustainable, high-quality engagement, but more work is needed to identify the specific competencies required to create these environments. We addressed this gap by developing a capability framework for Ontario Health Teams (OHTs), a newly established structure for planning, designing, organizing and delivering care in Ontario, Canada.
View Article and Find Full Text PDFEpilepsy Res
December 2024
Cornwall Partnership NHS Foundation Trust, UK; Peninsula School of Medicine, University of Plymouth, UK. Electronic address:
Background: Adherence to anti-seizure medication (ASM) by people diagnosed with epilepsy in sub-Saharan Africa remains low. The factors for low adherence are not well understood. To improve adherence, it is important to understand the perceptions and views of healthcare professionals delivering epilepsy care to this population.
View Article and Find Full Text PDFEnter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!