Objectives: To determine the positive and detrimental aspects of social support prior to allogeneic or autologous bone marrow transplantation/stem cell transplantation.
Design: Cross-sectional.
Methods: Patients completed the German version of the Illness-specific Social Support Scale (ISSS) and the Quality of Life (QoL) Questionnaire Core 30 (EORTC QLQ-C30).
Results: Participants were 282 patients (62% autologous SCT, 39% women, 97% haematological malignancies, 72% with partner). We found satisfactory reliability values for both ISSS scales: positive support (Cronbach's alpha=.91) and problematic support (=.73). Patients living with a partner displayed higher scores in positive interaction than patients living alone (p<.001). Analysis showed a significant main effect of partnership, p<.001; F(1)=8.345, and better scores for women, p<1; F(1)=2.758. Furthermore, we determined a negative correlation between problematic interaction and emotional/social function (p<.001) and a positive correlation with insomnia, but no correlation between positive interaction, QLQ-C30, and Karnofsky's index.
Conclusions: We could distinguish between helpful and harmful support, and determine clinically important associations of problematic support. Partnership seems to be a major source of positive interaction.
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