AI Article Synopsis
- The study examines how parenting stress is related to the behavior of children with Joubert syndrome, a rare neurodevelopmental disorder.
- Approximately 20% of the children exhibited significant behavioral issues, while most showed no major problems; parents reported high levels of stress, with mothers experiencing more than fathers.
- The research found that maladaptive behaviors were a key factor influencing parenting stress, especially for mothers, highlighting the need for support for parents of children with this condition.
Article Abstract
This study describes the relationship between parenting stress and behavior in children with Joubert syndrome, a rare genetic neurodevelopmental disorder. Parents (N = 43) reported severely impaired child adaptive behaviors. Most children did not show maladaptive behaviors, but a subset of approximately 20% displayed significant problems in areas such as inattention, overactivity, social withdrawal, and atypical behaviors. Mothers (59%) and fathers (40%) reported elevated levels of parenting stress. A hierarchical regression, including demographics, adaptive behavior, and maladaptive behavior, predicted 67% of the variance in mothers' stress and 40% of the variance in fathers' stress. Maladaptive behaviors uniquely contributed to maternal and paternal stress. The child's adaptive behavior level contributed significantly to parenting stress for mothers but not for fathers. Findings provide a better understanding of the impact of child behavior on parents caring for a child with Joubert syndrome.
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| http://dx.doi.org/10.1177/08830738060210020401 | DOI Listing |
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